USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021

https://twitter.com/user/status/1404645440373547008

 

https://www.cdc.gov/coronavirus/2019-ncov/hcp/clinical-care/post-covid-management.html

 

Ugh. There's always a poison pill, uh?

Hopefully not too much is made of this but let's be honest, the ideologues won't care what's in this anyway, whether this bit is there to placate them or not.

This pretty much sounds like the first actually competent and accurate use and description of PEM in an official document. It's been there before but never with an understanding of what it is. And it only took half a century! Chronic medicine truly moves at the speed of molasses.

 

ME/CFS, Fibro, PTLDS, Mast cell disorder, dysautonomia, and now long-haulers. What a fraternity. Good to know the CDC has "established symptom management approaches". No worries.

 

https://twitter.com/user/status/1405373504246059009

 

CDC Clinician Outreach and Communication Activity Webinar: "Evaluating and Caring for Patients with Post-COVID Conditions" took place on Thurs 17th June.

Overview

During this COCA Call, clinicians will learn about the Centers for Disease Control and Prevention’s new interim guidance which provides a framework for healthcare providers in their initial assessment, evaluation, management, and follow-up of persons with possible post-COVID conditions. Post-COVID conditions refer to the wide range of physical and mental health consequences experienced by some patients that are present four or more weeks after SARS-CoV-2 infection, including by patients who had initial mild or asymptomatic acute infection. Post-COVID conditions are still being characterized and include symptoms such as cognitive difficulties, fatigue, headache, dyspnea, and palpitations. Subject matter experts, physicians, and patient representatives from across the United States collaborated to develop the new guidance. Rapid recognition by healthcare providers of patients with post-COVID conditions and multidisciplinary care using the assessments and approaches described in this guidance could improve the wellbeing and treatment of people with post-COVID conditions.

Recording at https://emergency.cdc.gov/coca/calls/2021/callinfo_061721.asp

 

#MEAction article from June 16:

CDC releases post-COVID guidance: 4 takeaways for ME/CFS

Here are the 4 takeaways listed:

1. ME/CFS is in included in the guidance

2. Long COVID patient input is making a difference

3. ME advocacy to CDC built a foundation for Long COVID

4. ME/CFS guidelines depend on NIH & CDC clearing the path for clinical treatment trials

 

Trial By Error: #MEAction’s Chronic Illness Survey; Patients’ Research Informs CDC’s Long-COVID Advice

https://www.virology.ws/2021/06/15/...ch-informs-cdcs-long-covid-advice/#more-16069