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  1. Sean

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    :hug: For all therapeutic solutions, NICE rated all clinical trials as providing weak or very weak quality medical evidence, without exception. It is worse than even that. The vast majority (89%, IIRC) were rated as very weak, and the remainder as weak.
  2. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    And please provide a robust definition of overactive, in this context.
  3. Sean

    Unevidenced recommendations of brain retraining in Bateman Horne Centers clinical guide for ME and longcovid

    It is like there are two different people writing their stuff, who never talk to each other.
  4. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He is an epidemiologist, was a professor in evidence synthesis for two decades, and is currently an emeritus prof in the same position, and has done a lot of work on systematic reviews and with the WHO, etc. He of all people should know what constitutes robust methodology. He has no excuse...
  5. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    What is the evidence that 1) it is "overactive", and 2) is the primary problem, not an appropriate response to, nor an unavoidable consequence of, a more fundamental and serious problem, and 3) is amenable to 'brain retraining' that consistently delivers a meaningful practical benefit, let...
  6. Sean

    Preprint Large-scale psychometric assessment and validation of the Modified COVID-19 Yorkshire Rehabilitation Scale C19-YRSm…, 2025, Horton et al.

    I don't think that is true. Directly or indirectly, concerns about methodology (which measurement definitely falls under) is the basic underlying issue dealt with here about almost everything coming out of the research. Particularly for the psycho-behavioural stuff, as they are by far the...
  7. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yep. If you are going to be basing your claim on your own personal anecdote, then that data is as subject to scrutiny and criticism as any other form of data. And your methodology even more so.
  8. Sean

    Exercise Intolerance and Response to Training in Patients With Postacute Sequelae of SARS-CoV2 Long COVID…, 2025, Cornwell et al.

    Exactly. ----------- Multidisciplinary clinics have emerged to provide comprehensive management strategies to patients with Long COVID. Based on absolutely no robust evidence whatsoever that these clinics either understand or have any helpful advice to offer.
  9. Sean

    A request to those involved in ME research to indicate their position on spinal surgery

    My family had one of the exceptions, not too many years back. Took a while for everybody required to give permission, we had an old guard v. new guard conflict in professional advice. But after years of nasty treatment-resistant symptoms there were no options left, and the kid improved...
  10. Sean

    Editorial: When the Treatment Needs a Home: The Application of Exercise Interventions in Long COVID, 2025, Menson and Gaalema

    Cochrane knew what they were doing, and what the consequences would be. There is nothing unintentional or innocent about this.
  11. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    “There are others who have... ...developed a post Covid psychiatric illness.” Can't imagine who he might be thinking of. :speechless:
  12. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    What is moral about imposing increasing hardship on, or simply abandoning, large numbers of sick or disabled people? All while telling them that it is for their own good? Or more and better quality research to find effective treatments or even prevent these problems in the first place?
  13. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    The most important advice would be to not pay any attention to advice from the psycho-behavioural school.
  14. Sean

    ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

    For anybody having trouble watching these videos via S4ME, they can be found on this YT channel.
  15. Sean

    A Medical Student Curriculum on Functional Medical Disorders 2025 Butt et al

    Okay, so they can more effectively inculcate medical ignorance and error in the next generation of doctors. And the value of that to patients is...?
  16. Sean

    UK Article June 2025: Doctors said I had ‘medically unexplained symptoms’. I have to treat myself

    The whole psychosomatic project is the greatest and cruelest catastrophe in modern medicine. Hands down winner. Not even close to second place. The degree, ubiquity, and sheer persistence of technical and ethical failure at all levels of governance required for this to situation to come about...
  17. Sean

    News from Scandinavia

    By far the hardest thing I have ever had to do.
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