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  1. ukxmrv
    Post

    [Poll] Experiences of PWME taking the contraceptive pill

    Shortly after the acute viral illness that started ME I began to feel nauseous and often vomit after taking contraceptive pills. This has never...
    Post by: ukxmrv, Aug 8, 2022 at 11:26 AM in forum: General ME/CFS discussion
  2. ukxmrv
    Post

    London Centre for Functional Medicine: Chronic fatigue

    The blurb sort of gives the impression that there is a medical doctor there somewhere but uses the word practitioner instead. Looking at the team...
    Post by: ukxmrv, Aug 2, 2022 in forum: UK clinics and doctors
  3. ukxmrv
    Post

    Functional Neurological Symptom Disorder (FND) Leading to the Development of Deep Vein Thrombosis (DVT), 2022, Othman et al

    How would the PT set off the DVT? I don't know anything about this topic. In the paper are they suggesting it was her inactivity that caused these?
    Post by: ukxmrv, Aug 2, 2022 in forum: Other psychosomatic news and research
  4. ukxmrv
    Post

    Has anyone seen David Strain or William Weir

    I've seen Dr Weir but only face-to-face in London. He does house calls sometimes and also visits different parts of the country. At one stage he...
    Post by: ukxmrv, Jul 28, 2022 in forum: UK clinics and doctors
  5. ukxmrv
    Post

    Ethical considerations related to post-infection syndromes in epidemics

    Geoffrey Palmer seems to have written a lot on the NZ system and how unfair it is. Also about how it was originally designed to be implemented to...
    Post by: ukxmrv, Jul 17, 2022 in forum: Other research methodology topics
  6. ukxmrv
    Post

    Careers (and job) advice for people with ME/CFS (maybe particularly young people) - a discussion

    I did pretty well in IT when I was less severely affected. It was sedentary, could work the unpopular night and evening shifts. There were always...
    Post by: ukxmrv, Jul 14, 2022 in forum: Work, Finances and Disability Insurance
  7. ukxmrv
    Post

    CPD Online College : What is ME?: scam

    https://uk.trustpilot.com/review/www.reviews.co.uk 22 May 2022 This site is full of fraudsters This site is full of fraudsters. As long as a...
    Post by: ukxmrv, Jun 26, 2022 in forum: General ME/CFS news
  8. ukxmrv
    Post

    CPD Online College : What is ME?: scam

    https://uk.trustpilot.com/review/cpdcourses.com "con artists", "scam" etc
    Post by: ukxmrv, Jun 26, 2022 in forum: General ME/CFS news
  9. ukxmrv
    Post

    Acceptance commitment therapy (ACT) for psychological distress associated with inflammatory bowel disease (IBD): protocol..., 2022, Evans et al

    If it is the same as my local pain clinic the real aim is to stop you looking for solutions. As I told the doctor there I am so glad I didn't do...
    Post by: ukxmrv, Jun 12, 2022 in forum: Other psychosomatic news and research
  10. ukxmrv
    Post

    Measuring sleepiness vs fatigue for sleep apnoea

    I have sleep apnea (tested) and would not describe myself as sleepy or drowsy. Did sleep a great deal on the first 10 years of ME but that was...
    Post by: ukxmrv, Jun 11, 2022 in forum: Other specific illnesses
  11. ukxmrv
    Post

    United Kingdom: Oxford Long Covid clinic (includes The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms)

    There was a participant at the New Zealand LC Symposium last week from a UK LC clinic. I could only hear parts of the discussion (time difference)...
    Post by: ukxmrv, May 30, 2022 in forum: UK clinics and doctors
  12. ukxmrv
    Post

    United Kingdom: Oxford Long Covid clinic (includes The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms)

    Do we have a good description anywhere which explains all the different names for GET and GET-like exercise regimes and what they consist of? I...
    Post by: ukxmrv, May 29, 2022 in forum: UK clinics and doctors
  13. ukxmrv
    Post

    Trading Lifespan For Health

    I used to have this trade all worked out when I was younger. Now after 38 odd years of this disease I am finding it harder to face the question.
    Post by: ukxmrv, May 27, 2022 in forum: General ME/CFS discussion
  14. ukxmrv
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    I could only dip in and out of it due to the time difference here in the UK. Must have missed most of the good parts (except for Anna Brooks)....
    Post by: ukxmrv, May 26, 2022 in forum: Regional news
  15. ukxmrv
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    I have a really bad feeling about this symposium. The lack of information on the speakers (apart from the obvious ones that come up on an internet...
    Post by: ukxmrv, May 17, 2022 in forum: Regional news
  16. ukxmrv
    Post

    Medically unexplained or not? Be aware of a somatic cause of Medically Unexplained Symptoms, 2022, Hilderink and van Vugt

    I think in a way that may have already occurred in an extent with the PWME who also have POTS. The first I heard of POTS was in the late 90s when...
    Post by: ukxmrv, May 5, 2022 in forum: Other psychosomatic news and research
  17. ukxmrv
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Zoom Symposium on LC through Otago Uni https://events.otago.ac.nz/longcovid2022/
    Post by: ukxmrv, May 4, 2022 in forum: Regional news
  18. ukxmrv
    Post

    What does it mean when an ME/CFS patient says they "got long covid" after catching SARS‑CoV‑2 (COVID)?

    I have been referred to a LC clinic by my GP (this was actually suggested by one after I had a adverse reaction to the AZ vaccine but then got...
    Post by: ukxmrv, May 4, 2022 in forum: Diagnostic Criteria and Naming Discussions
  19. ukxmrv
    Post

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    It is nuts but the advice to get back to work and exercise has been a consistent feature after any viral attack I have had in the past 35 years....
    Post by: ukxmrv, Apr 25, 2022 in forum: Long Covid research
  20. ukxmrv
    Post

    Body Reprogramming: Reframing the Fibromyalgia narrative and providing an integrative therapeutic model, 2022, Fitzdonald Davies et al

    Reminds me of my appointment with Dr Nixon at Charing X Hospital all those years ago. (He was the ME = hyperventilating Cardiologist) Dr Nixon -...
    Post by: ukxmrv, Apr 16, 2022 in forum: Other psychosomatic news and research
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