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  1. Hutan
    Post

    Persistent capillary rarefication in long COVID syndrome, 2022, Rovas et al

    A mostly German team, "Division of Pulmonary Medicine at University Hospital Münster" Forum thread on that study by the same team here: Sustained...
    Post by: Hutan, Aug 12, 2022 at 12:45 AM in forum: Long Covid research
  2. Hutan
    Post

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    I was given an ACTH test, also probably because the specialist felt he should do one test to show he had tried something. My morning cortisol...
    Post by: Hutan, Aug 11, 2022 at 9:51 PM in forum: ME/CFS research
  3. Hutan
    Post

    Mind Body Intervention for COVID-19 Long Haul Syndrome

    From Clinical Trials Open label, tick No active control arm, not even a wait list group to give some idea about the impact of natural recovery...
    Post by: Hutan, Aug 11, 2022 at 9:47 PM in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Hutan
    Post

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    Can you elaborate @Suffolkres?
    Post by: Hutan, Aug 11, 2022 at 9:20 PM in forum: ME/CFS research
  5. Hutan
    Post

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    There really wasn't much benefit: Given it was only the global wellbeing assessment that showed any difference, and then only a small benefit...
    Post by: Hutan, Aug 11, 2022 at 3:17 PM in forum: ME/CFS research
  6. Hutan
    Post

    Podcast: "Doctors and dualism" - Diane O'Leary, 2022

    4.50 "It turns out diagnostic uncertainty is extremely common in medicine. In fact by many standards, half of symptoms are diagnostically...
    Post by: Hutan, Aug 11, 2022 at 11:03 AM in forum: General ME/CFS news
  7. Hutan
    Post

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    It's a bit better, but it still doesn't link to a government page that lists specific health conditions that automatically get better treatment....
    Post by: Hutan, Aug 11, 2022 at 3:53 AM in forum: Petitions
  8. Hutan
    Post

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    Yes, it is very easy. And the petition is very straightforward in its request. Up to 2758. This is all of the text that is part of the...
    Post by: Hutan, Aug 11, 2022 at 2:25 AM in forum: Petitions
  9. Hutan
    Post

    Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?, 2022, Orji et

    There are some quotes on the following three themes of the qualitative research that might be useful:
    Post by: Hutan, Aug 10, 2022 at 10:36 PM in forum: ME/CFS research
  10. Hutan
    Post

    Requests for information/papers/sources/documentation

    It would be a good topic for a study, to refute the idea that people with ME/CFS are high users of medical services (after the initial effort to...
    Post by: Hutan, Aug 10, 2022 at 10:29 PM in forum: Advocacy Projects and Campaigns
  11. Hutan
    Post

    Phenotypic characteristics of peripheral immune cells of ME/CFS via transmission electron microscopy: A pilot study, Jahanbani et al, 2022

    Interesting to read about Fereshteh's background. I had the exact same thought when reading her paper this morning, so Fereshteh's wonder and...
    Post by: Hutan, Aug 10, 2022 at 7:01 AM in forum: ME/CFS research
  12. Hutan
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    We now have a thread for this petition: New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August...
    Post by: Hutan, Aug 9, 2022 at 11:41 PM in forum: Regional news
  13. Hutan
    Post

    Phenotypic characteristics of peripheral immune cells of ME/CFS via transmission electron microscopy: A pilot study, Jahanbani et al, 2022

    I thought the discussion and conclusion were thoughtfully written, and think they are worth reading. I hope this team will be funded to do...
    Post by: Hutan, Aug 9, 2022 at 10:53 PM in forum: ME/CFS research
  14. Hutan
    Post

    Phenotypic characteristics of peripheral immune cells of ME/CFS via transmission electron microscopy: A pilot study, Jahanbani et al, 2022

    Looking carefully at cells with an electron microscope seems like a good thing to do. There were a lot of preparatory steps, and with such a...
    Post by: Hutan, Aug 9, 2022 at 10:33 PM in forum: ME/CFS research
  15. Hutan
    Post

    Association of Vitamin B12, Vitamin D, and Thyroid-Stimulating Hormone With Fatigue and Neurologic Symptoms in ... Fibromyalgia, 2022, Munipalli et al

    B12 levels were a good thing to look at in a big fibromyalgia population, but the results aren't very impressive. The symptoms of fatigue, memory...
    Post by: Hutan, Aug 9, 2022 at 9:39 PM in forum: 'Conditions related to ME/CFS' news and research
  16. Hutan
    Post

    International: IACFS/ME - International Association for CFS/ME

    IACFS/ME 2022 Virtual Medical and Scientific Conference July 27 - 30, 2022 I think the conference was a useful contribution to the ME/CFS...
    Post by: Hutan, Aug 9, 2022 at 8:50 AM in forum: News from organisations
  17. Hutan
    Post

    Clinical Characteristics of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Diagnosed in Patients with Long COVID, 2022, Tokumasu et al

    I think that the data on symptoms collected on the first visit were not all that was used to diagnose someone with ME/CFS. It seems as though...
    Post by: Hutan, Aug 9, 2022 at 6:16 AM in forum: ME/CFS research
  18. Hutan
    Post

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    @SNT Gatchaman, or anyone Associated Myalgic Encephalomyelitis Society Incorporated Is that ANZMES or another organisation??
    Post by: Hutan, Aug 9, 2022 at 5:41 AM in forum: Petitions
  19. Hutan
    Post

    Retraining and control therapy for pediatric psychogenic non-epileptic seizures (+ 1 year follow-up), Fobian et al, 2020

    Forty-two patients were assessed for eligibility and 32 were randomized. 3 were lost to follow-up, all in the support therapy arm, leaving 17 in...
    Post by: Hutan, Aug 9, 2022 at 12:51 AM in forum: Other psychosomatic news and research
  20. Hutan
    Post

    Retraining and control therapy for pediatric psychogenic non-epileptic seizures (+ 1 year follow-up), Fobian et al, 2020

    This quote from the first paper is interesting. My first observation is that treatment is routinely being provided to young people with PNES in...
    Post by: Hutan, Aug 9, 2022 at 12:12 AM in forum: Other psychosomatic news and research
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