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  1. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This is the latest correspondence with Cochrane after I wrote to say I was preparing a complaint on 3 January. Getting hold of the email address...
    Post by: Caroline Struthers, Jan 19, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  2. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I will be putting in an application for funding to explore the feasibility of this policy to the NIHR "Research for patient benefit" funding...
    Post by: Caroline Struthers, Jan 16, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  3. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    My proposal is to systematically produce template trial protocols for the use of funders. The design and methods review would be done in advance...
    Post by: Caroline Struthers, Jan 12, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  4. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes!! I noticed this and plan to contact the author
    Post by: Caroline Struthers, Jan 10, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  5. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks. I will draft a more detailed outline of the idea as soon as I can and would welcome comments on it, probably by starting a new thread....
    Post by: Caroline Struthers, Jan 8, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  6. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I am planning to put in a bid for NIHR funding for a project to develop a systematic way to involve patients and the public in developing trial...
    Post by: Caroline Struthers, Jan 6, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  7. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I may copy in Gillian Leng, ex CEO of NICE, who I have written to about Cochrane and their misconduct in relation to this review and the fact...
    Post by: Caroline Struthers, Jan 5, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  8. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    They do say they will be working with NIHR which is slightly worrying...I will have to dig out where I read that
    Post by: Caroline Struthers, Jan 5, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  9. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I think he has probably moved on, now Cochrane in the UK has been defunded. As of end of March this year, all the Cochrane review groups in the...
    Post by: Caroline Struthers, Jan 5, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  10. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I haven't put the letter to Catherine Spencer up, but I probably will tomorrow
    Post by: Caroline Struthers, Jan 4, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  11. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Have finally got round to starting work on the complaint to Cochrane about the Editor in Chief ignoring the advice of arbitrator Gordon Guyatt....
    Post by: Caroline Struthers, Jan 4, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  12. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    It hosts and funds Cochrane Norway
    Post by: Caroline Struthers, Dec 19, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  13. Caroline Struthers
    Post

    UK House of Lords/ House of Commons Questions

    I just emailed her. Basically asking if she was happy with the non-answer...
    Post by: Caroline Struthers, Dec 15, 2022 in forum: General ME/CFS news
  14. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Where does flottorp say this? I can share the robust exchange
    Post by: Caroline Struthers, Dec 7, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  15. Caroline Struthers
    Post

    Who Agrees That GRADE is (a) unjustified in theory and (b) wrong in practice?

    Time to send my complaint to Cochrane
    Post by: Caroline Struthers, Dec 3, 2022 in forum: Other research methodology topics
  16. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Agree. Systematic reviews are now a monstrous self-serving industry. I remember one clinician (dementia) I worked with at Cochrane saying the...
    Post by: Caroline Struthers, Nov 23, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  17. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes, could be. Wouldn't Hilda's independent advisory group be able to help with that? It's so bizarre, even for Cochrane.
    Post by: Caroline Struthers, Nov 23, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  18. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes, but why can't the review writing group tell us what's going on? What about this "forging better relationships with patients" Cochrane's...
    Post by: Caroline Struthers, Nov 23, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  19. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes, I am trying to keep the ball in play in the absence of any information from Hilda or Cochrane
    Post by: Caroline Struthers, Nov 23, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  20. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I will probably submit a complaint based on the fact the Editor in Chief and the review authors/Fretheim ignored Guyatt's instruction about making...
    Post by: Caroline Struthers, Nov 23, 2022 in forum: 2021 Cochrane Exercise Therapy Review
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