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    Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability..., 2022, O'Brien et al

    seems like some one wants to create a new system to deny any benefits to people with fluctuating health conditions . having a few relatively less awful days does not mean society is going to magically make you employable .
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    Persisting Symptoms After COVID-19-Prevalence and Risk Factors in a Population-Based Cohort, 2022, Förster et al

    "multidisciplinary management" are just the normal buzz words of the last decade or so basically not my problem someone else must do something . as far as i am concerned a multidisciplinary team means no individual takes on responsibility for the patient buck passing at its finest .
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    UK: Office of National Statistics: COVID-19 Schools Infection Survey, England: mental health and long COVID reports

    teenagers in general are naturally prone to all kinds of mood changes part of growing up .to make any assumptions based on answers to the questionaire above is beyond bias ,stupidity seems to be a prerequisite when doing this kind of work .
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    Fatigue, patient reported outcomes, and objective measurement of physical activity in systemic lupus erythematosus, 2016, Mahieu et al

    you have decreased energy due to ongoing inflammatory processes so we would like you to waste the energy you have left on non productive exercises . these people just don't understand what their doing .
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    i clicked like on the above post not because of the content but because this man seems to get a lot of air time . considering that he is an insult to anyone who actually practices the scientific method rather than dogmatic beliefs.
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    A Natural History of Disease Framework for Improving the Prevention, Management, and Research on [PVFS] and Other Forms of [ME/CFS], 2022, O'Boyle

    that is a lot of wishful thinking . in my lived experience medical system do not operate in the best interest of patients . hence the constant use of rehabilitation for everything their is no point in looking to rehabilitate something that you have no real understanding of . yet again a one...
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    Increased frequency of fibromyalgia among patients with chronic pain presenting to internal medicine clinics...., 2022, Javed et al

    emphasis on the cost reduction as in reducing tests and any other investigation . so here you go you have been given a diagnosis now go away and do not expect any real help or any serious investigations into your symptoms =lazy medicine on the cheap . who benefits from this not the patients who...
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    Functional seizures are associated with cerebrovascular disease and functional stroke is more common in patients with..., 2022, Fox et al

    i wonder if the authors understand how ambiguous the word functional has become and what the bps type authors infer from this term .
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    The risk factors for self-reported fibromyalgia with and without multiple somatic symptoms: The Lifelines cohort study, 2022, Creed

    i would say the greatest predictor of am fm diagnosis is the systematic failure of medicine . excessive cost cutting limited time with gps and the gross stupidity involved with the you "can only discuss one symptom at a a time appointment system" . what happened to having a full medical...
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    Outcomes in post-acute sequelae of COVID-19 (PASC) at 6 months post-infection part 2: Psychological functioning, 2022, Whiteside et al

    who is still funding this personality assessment drivel .i thought it would of died of after the trash papers about cancer personalities .
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    Brain Structural Changes during Juvenile Fibromyalgia: Relationships with Pain, Fatigue and Functional Disability, 2022, Sunol et al

    "The partial overlap between juvenile and adult fibromyalgia findings strengthens the importance of early symptom identification and intervention to prevent the transition to adult forms of the disease." this seems like wishful thinking not really appropriate for any supposedly scientific...
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    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    signed . thanks for bringing this petition to our attention .
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Governments insurance companies and even publicly paid medical professionals are hoping every person with a chronic condition will stop bothering them . so of course they want to perpetuate the idea that patients can self manage their conditions . In reality of course patients cannot because of...
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    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), 2022, Scheibenbogen et al

    imho we are still very much in the dark regarding the gut biome and many papers seem to have jumped on the topic creating a new fad . until their is much better evidence regarding benefits potential harms i see this talk of fecal transplants for multiple different disorders as a guessing game .
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    Personality, Defense Mechanisms and Psychological Distress in Women with Fibromyalgia, 2022, Romeo et al

    people with victorian type values born from privilege and ignorance should have no place and garner no respect for dragging up this personality based nonscience and producing trash like this ,
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    How individuals with low back pain conceptualise their condition: A collaborative modelling approach, 2022, Hodges et al

    some people call whale communication singing . moaning and wailing is rather insulting to an entire species .
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    MElivet - Blog posts by Nina E. Steinkopf

    i do not see it as a sect more like a pyramid selling scam
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    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    medicine is supposed to be a field of practice as much art and experience . no true perfectionist would cope with the massive lack of genuine scientific data to base their diagnosis on.
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    Article: Stamp out fake clinical data by working together by Lisa Bero

    so 40% falsified data and another 40% cherry picked data . and no chance of any real policing of the whole mess .
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    Stigma perceived by patients with functional somatic syndromes and its effect on health outcomes - A systematic review, 2021, Ko et al

    because nearly everyone has some experience of complaints of the digestive system such problems are readily excepted by others .so of course their is more understanding and less stigma around ibs unless it is from the more simplistic members of the medical profession .
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