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From what I understand stand, they will- Increase UC for everyone claiming, from about £400 per month to about £775 per month Get rid of the WCA assessment (with its different criteria and points from PIP) Merge LCWRA and LC to form the “health group” and receive the “health” payment on top...

Bizarre article in the independent about Chronic Fatigue Syndrome. I guess someone just copied an old press release from 2009...

They actually looked annoyed at my tribunal when I said I didn’t drive (never took the test) and didn’t have a blue badge (don’t drive, don’t get driven anywhere except the supermarket, which has a car park). I guess these are the usual areas where they “catch people out” and I accidentally...

I agree, my language and reasoning and citing of the law were brilliant, but they still found (ridiculous) ways to justify their decision.

My point was that I think this is the only illness where you have to stop doing things before they make you unwell (induce fatigue or PEM). Benefits aren’t set up for that. Nothing is, really.

I think there is a lot of masking involved. We already know that autistic women often “mask” to fit in, women in general are told to put other peoples feelings/comfort/needs ahead of their own. Mix that with a “majority female” disease (which it may not be, men could be under diagnosed but it...

This might be side-thoughts @bobbler but what I’ve been thinking about benefits is along similar lines - it’s hard to get across the cumulative effects and the rolling PEM. And there are none so deaf, as those who will not listen. The other part of the cumulative/rolling PEM is this - visible...

Mine are near my ovaries but I can tell it’s not them! Ovary pain is very specific lol.

Yeah that’s not a thing any more. I guess having (most) scores being an even number helps because 8 is the first threshold.

I get sore lymph nodes in my throat and near the groin, very occasionally in the armpits. The body has lots! They feel tender to touch but don’t usually qualify as “swollen”.

3 points only exists in “help getting in or out of the shower”, apart from the 1 point for meds, the others are all in multiples of 2.

Yes they will be abolished, because it seems they might have abolished the LCWRA payment. Therefore you don’t need to be assessed as to whether you’re LC or LCWRA as you’ll automatically go into LC group and receive the lower LC rate, and have to prepare to find work. Unless you’re severely...

No, they’re not abolishing “unable to work” as a select few severely disabled will receive benefits and won’t need reassessment. I’d bet my last Penny that ME/CFS won’t be in that group. They’re making everyone else join the “prepare for work” group, and paying less UC top up that way. I’ll...

This is the rule, that they don’t follow! You can’t make sense from this nonsense. There’s even specific guidance on how to award points if there are two different periods of the day where ability varies. They just ignore it and say you’re fine.

In daily living all the categories are scored 2/4/6/8 (except taking meds which starts with a 1) 2 is least disabled and 8 is most. 2 generally means you need an aid or adaptation. So I guess they’re doing away with all the 2’s on the basis that you can manage by using an aid, so no ££££ for...

I understand this Sasha, hence why my whole submission re-iterated this fact. if you could convince the assessors and the Tribunal panel and Judge of this, I’d be grateful as they’ve said I’m quite able to wash, cook, etc all the live long day.

yes I have a lot of 2’s in Daily Living (despite being bedbound for the majority of the day due to the fatigue, and being unable to do anything reliably for most of the day) it is a worry for me. Although I should get at least 4’s on some. It’s their own stupid rules that if you can’t do...

See I read somewhere that they said jobless people are claiming additional benefits because Universal Credit isn't enough to live on. So they are going to increase Universal Credit but decrease the extra benefits, so people don’t do this. Now that may or may not be true, but it makes a little...

Certainly explodes conventional wisdom. In a dangerous post-facts, post-expert, post-truth way.

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