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This title is so much better than the Khrono one, stating that there was a problem with study design not that it was stopped due to "a complaint by the ME association".

Now, if only we could get people to understand PEM and backlash. Still, overall I'm happy with what they wrote.

After the funding for the "three day intervention" had been secured they did still call it LP, so who knows what the deal was. Here is a piece from Dagens Medisin in 2012 about the study they wanted to have then (in Norwegian, to tired to make a google translate)...

I've been thinking about this, because the payment (royalties?) to PP was not mentioned in the application and that was an issue about one of the former studies (there were some opinion pieces about this in Dagens Medisin). If no royalties were to be paid, have the course changed? Agreed. So...

I want tophats :rofl:

Well, is this the second or third attempt of an LP study in Norway? I think there's been two previously, one around 2010 when there were some issues with payment to Phil Parker (and probalby more ;) ) and then the other one in 2017 when the patient community were blamed in Aftenposten for Ahus...

"Should not take place in its current form". It's still a win and I'll take it :laugh: Their biggest issue seems to be that Landmark would choose the participants and that this would be done without using objective criteria (so that it cannot be generelizable to others pwME), I wonder how they...

Forskning.no no longer allow for comments on their articles, I think the article is published on facebook and can be commented on there.

In Norway we have something called a "green prescription", which is diet and lifestyle help, including access to certain easily accessible gyms (I wouldn't really call them gyms, but I'm unsure what other word I would use in english). It's been a thing for years but many GP's don't know about it.

I have been thinking about writing them an email to point out things like this. Just need to get my exams out of the way (last one tomorrow!) and get some rest so I'm able to argue coherently.

Today there is an article in Forskning.no about the paper Flere burde få kognitiv atferdsterapi mot ME mener forsker More people should be recieve cognitive behavior therapy for their ME says researcher I'm not sure I agree with the statement that few people are offered CBT as is said in this...

I did not know atropin was a real name for anything, it is used as a murder weapon by witches in many old Norwegian crime audio plays I listened to when I was younger.

How is that not in the head?

I would love more research into this.

And weight alone doesn't say anything about body composition. I've lost weight the last few years, muscle has been exchanged for fat, but I can still wear the same clothes so it's hard for people to see.

I'm not sure "bio" really helps people understand, I have a degree in biomedicine and have repeatedly been asked if I'm a plant doctor...

And other parts of the world. I was explaining why pwME are so upset about certain researchers after one of the "patients are abusing researchers" articles were published over here, and it was ended by the other person saying "I don't believe such shoddy research and care is possible or would be...

Moderator note Moderators are aware that the widening of this discussion has taken the thread off topic, but have decided not to move any posts, since it has relevance here. However we ask now that the thread return to the subject of Abilify. If you wish to continue discussing how we discuss...

Wasn't sure where to put this, but we have had a number of posts on the forum about what "recovery" means. Some Norwegian academic wrote about it today: Hva betyr det å bli bra etter helseproblemer? What does it mean to recover after being ill?

I might be ahead of the curve as my mother among other things work with supervising home care for people with parkinsons :) I wish we had more cell biology and biochemistry in nutrition studies. At bachelors level in Norway there is one intro course in each, and an intro ourse in microbiology...