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He is. He has written about PACE before, for instance: PACE trial and other clinical data sharing: patient privacy concerns and parasite paranoia Since the PACE study came out in 2011, the patients, but also a number of academic scientists, remained unconvinced of the published therapy...

Another blog post about the same topic, so I'll post it in this thread: Trial By Error: The Reporter's Questions for Professor Racaniello The reporter writing the story I posted about earlier also contacted Professor Racaniello. Here are the questions asked, and his answers

It does look a bit worrying but I do have a hope that things may actually be turning (ok, I've said that for 20 years, but one day it'll be right). There IS more general awareness about what a dreadful disease ME is and what desperate situation patients are in. Very little research has been...

:balloons::balloons:The petition has now got over 7 000 signatures!!:balloons::balloons: Original link to petition in Norwegian https://www.underskrift.no/vis/7358/ English translation of petition details and instructions on how to sign here...

ETA: hmm... seems the whole post from MP Carol Monaghan wasn't included. It reads: Carol Monaghan MP leading the House of Commons debate on ME treatment️ WATCH: My speech to lead the House of Commons debate on ME treatment I thank all MPs who sponsored and spoke during the debate, and the the...

Nina E. Steinkopf has a short reply in the same newspaper. Vi krever å bli hørt google translation: We demand to be heard The Competence Service mixes ME with other conditions and bases its recommendations on low quality research. Furthermore, the management of the Competence Service recommends...

And the mess continues. According to a new book about the Macchiarini scandal, the documentation for its investigation has vanished.. Universitetsavisa: Dokumentasjonen til Macchiarini-granskningen har forsvunnet Google translation: The documentation for the Macchiarini investigation has...

Here's a google translation: ToTo Neuroimmunologisk Kurativ Behandling: På ME-fronten: Bjarte Stubhaug med grovt forskningsetisk overtramp google translation: At the ME-frontline: Bjarte Stubhaug with severe research ethical oversteps Not in my wildest imagination, had I thought that...

Update on the blog Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME Update on January 29: I love how patients keep me on my toes. A savvy reader pointed out to me today that even members of the GET/CBT ideological brigades have dropped the notion that attributing...

Here's a direct link to the blog post at Questioning Answers A 4-Day Mindfulness-Based Cognitive Behavioral Intervention Program for CFS/ME" but.. I did um-and-ah about whether I should blog about the findings reported by Bjarte Stubhaug and colleagues [1] observing that "a brief, concentrated...

New blog post from David Tuller: My Letter to Professor Chew-Graham About METRIC Earlier this evening, I sent the following e-mail to Carolyn Crew-Graham, a professor of general practice research at Keele University. Professor Chew-Graham is the lead author of METRIC, the atrocious online...

Steve Brine's Troubling Claim in Parliamentary Debate on ME I want to focus on a point Brine made regarding the importance of including updated information about ME in medical education—one of the key planks in the motion passed by unanimous voice vote on Thursday.

Yes, I suppose you're right it could have gone either way.

I remember this, that it was said BBC was working on a documentary. Does anyone know more about whether it was stopped and how/why? (Perhaps it has already been discussed in this thread, I haven't been able to read all the posts)

The petition's initiator, Nina E. Steinkopf, has written a reply as an open letter on her blog. Forakten for det mest sårbare pasientene google translation The contempt for the most vulnerable patients Finally, I would like to thank everyone of you for the debate in BT. Rarely has the disdain...

Monaghan: If graded exercise was a drug, it would have lost its licence

Agree. It's surprisingly emotional, patronising and aggressive.

I think this will get uglier before it gets better. But for their own sake, as health care personell putting their name on something so vile towards patients - why not instead at least try to pretend you have the patients best interest in mind? Of course, it's better for us, when these...

Initiating Care of a Patient with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) This paper introduces the primary care physician to the unique and challenging aspects of initially diagnosing and managing a complex condition for which there are a plethora of symptoms, few physical...