Search results

A letter to the editor signed 23 doctors/psychologists/psychiatrist objecting against the petition. Here's a (very quick) translation: Do we want the healthcare of the ME-bloggers? Are we going to let bloggers handpick doctors, set diagnosis and choose treatments? In the newspaper Bergens...

What an impressive review. Great work, and it is bearing fruit. The Berkeley fiscal year ends June 30th, so I will need to decide soon if I am going to crowdfund again this spring and continue this project for another year. Please do! :woot: :woot:

Agree. Articles like this promoting that view causes set backs for ME patients and leads to more suspicion, patient blaming and more suffering. I keep thinking we're beyond discussing whether ME is physiological or psychological, but the psychosomatics don't let go easily, do they?

Another sensationalist article about this study. This time in one of Norway's biggest newspapers. It includes a comment from Olav Mella. The article is paywalled, so here's a summary: There's an introduction of the treatment: Education: 2 lessons for two hours, on day one and day three Physical...

An article about the young couple Jasmine and Alex. Jasmine has epilepsy, ME and POTS and uses a wheel chair. They talk about the prejudice they meet. Disabled woman slams strangers who mistake her boyfriend for her carer While the young couple are stronger than ever, Jasmine does still find...

This is a private initiative from Stryn, Norway. They've organised ME-conferences before with great programme and results. This year there will be conference for everyone who wishes to attend at Tuesday March 26th from 16.30 - 20.30. Nest day, at Wednesday 27th, there is a conference for health...

That's a good idea! Will do the same.

The Swedish journal for the psychology association has a short article about a psychologist with ME who were first denied benefits as ME is something which can be treated. She just won a case in court where the court agrees that there are no medical rehabilitation or treatments that can reduce...

Absolutely and feel free to do so. I don't think there is a lot about her and her team's work in English yet. This recap of her lecture is a start and I'd be very curious to hear thoughts about the research from forum members.

The Norwegian ME Association accepts applications to them, but researchers can also ask them as a patient organisation to apply for allocations to their project from a foundation called Extrastiftelsen. This foundation only gives to Norwegian projects, but it's not specified if the same goes for...

The Norwegian ME Association is now accepting applications for allocations to medical research into ME. Closing date for applications are in April and the researchers/projects who get the allocations will be announced on May 12th. I believe this is for Norwegian projects only, but not a 100%...

David Tuller's lecture from this conference is now on YouTube

From the article: In the UK, CBT and GET are still the NHS’s approved treatments under guidelines from the National Institute for Health and Care Excellence (NICE). NICE is undertaking a review of this. But this has proved controversial. Because as ME Action UK reported, among the people sitting...

I wonder if the respondents are patients who got ill when they were children/adolescents and are now adults or if they're still children/adolescents, as the journal is frontiers in Pediatrics. And I wonder why they are using Fukuda criteria..

Yes, bizarre and self contradictory in its argumentation.. A number of diseases that were previously subject to stigmatization has in the modern era been destigmatized. This is the case for a number of sexually transmitted diseases, stress, depression, epilepsy, congenital metabolic diseases or...

6 500 signatures!! And you can still sign if you haven't already: Original link to petition in Norwegian https://www.underskrift.no/vis/7358/ English translation of petition details and instructions on how to sign here https://melivet.com/2018/08/25/petition-to-help-norwegian-me-patients/

The initiator behind the petition against the Norwegian competence service for ME/CFS and their psychosomatic views (discussed in this thread) says on Facebook: On the same day as the petition is about to reach incredible 6 500 signatures, the newspaper Bergens Tidende publishes an article about...