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Short article with summary of main points from the journal to the Swedish Medical Association. Läkartidningen: SBU: Underlag saknas för behandling vi ME/CFS Swedish Medical Association: SBU: Evidence is lacking for treatments of ME/CFS

Good article about ME in a Norwegian women's magazine. We learn the story to Sol, who got ME after mononucleosis when she was 17 years old. She is still sick now, 4 years later. Paediatrician and neurologist Kristian Sommerfelt has long experience with ME and provides updated and relevant...

I contacted SBU asking if there will be a summary in English, which they confirmed :)

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Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU) published today a report on ME. They are an independent national authority, tasked by the government and evaluates methods used by medical and social services. SBU: Myalgisk encefalomyelit och kroniskt...

During the recent years the Norwegian Parliament has allocated earmarked grants for the RituxME study. Now that the study has finished, the government decided to remove this annual post of 2 million NOK (231 457 USD/ 183 801 GBP). Patients have mobilised and protested and during Saturday's...

Saw it in a tweet from MEAction, email will probably be sent soon

#MEAction: #MEAction met with NIH director - Here's what happened #MEAction appreciates that Dr. Collins, Dr. Koroshetz, Dr. Nath, and NIH program staff took the time to meet with us. We felt that there were some good discussions on opportunities to incrementally advance the field that will be...

Norwegian ME-sufferer Marianne Grøtte has written a wish list for Christmas. Not to Santa, but to politicians. She gives some background information about the situation for ME patients and wishes earmarked funding for medical research, increased knowledge, ambulant teams in every region with...

A paywalled article from a local Norwegian newspaper about a young man (20) who has suffered from ME since he was 11. For some years he could only go to school once a week. But he managed to complete and now works as an apprentice for a big IT-company. His apprentice time is extended from 2...

Letter published today at BMJ Evidence-Based Medicine by Catherine Riva et al: Lessons learnt on transparency, scientific process and publication ethics. The short story of a long journey to get into the public domain unpublished data, methodological flaws and bias of the Cochrane HOP vaccines...

Heartening to see a tweet like this. It's from Jonas Ekström, Swedish MD and politician. It says: It feels I should devote more of my doctor time to ME/CFS. A frustrating and debilitating condition, where patients struggle to receive help

Very reassuring though to read they've used the criteria from the PACE study for inclusion..

oh dear.. Bjarte Stubhaug is a psychiatrist with a doctorate on chronic fatigue syndrome or "neurasthenia", which is the same according to him. He runs a resort in Norway with a four-day treatment plan including mindfullness, walks and classes. He doesn't distinguish ME from stress, burnout etc...

The petition got over 6 100 signatures. That's far more than I'd hoped for and a very strong signal that something is wrong with the national competence service for CFS/ME. Initiator Nina E. Steinkopf has written an extensive document about the background for this petition. It includes recent...

The article is among Nature's favourite feature stories in 2018 :thumbup:

Very nice and interesting to read this blog post about the situation for ME patients in Norway. Tuller has covered a lot and provides an up to date account of the situation. Hope the blog post will reach some of the health institutions in the country. It might be sobering to know people are...