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Happy to! The Research Council of Norway has written about the pilot project in English https://www.forskningsradet.no/en/Funding/BEHOVME/1254021735078/p1254006410319?visAktive=true And there's a thread about it here from February...

It seems likely that a ward for ME patients might open in Västerbotten (North in Sweden) by next summer. For time being ME patients must travel all the way to the capitol, Stockholm in order to see a specialist in ME/CFS, so this is promising news. Folkbladet: Mottagning för ME-sjuka på gång...

Review from Book Depository: Classic Pacing for a Better Life with ME Classic Pacing for a Better Life with ME is a self-help book which explains pacing and how it can be applied to daily life. Although aimed at patients, the book can also be of interest to professionals.

Feedback submitted from Mark Vink The studies in the review do not provide any evidence that graded exercise therapy is safe, on the other hand, patient evidence and the literature show that it is not safe. Cochrane replies: The Editor in Chief is currently holding discussions with colleagues...

BMJ and Bristol's Ethics Exemptions Earlier today, I sent the following e-mail to Dr Fiona Godlee, editorial director of BMJ. I cc’d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP. I also cc’d Teresa Allen of the Health Research Authority.

Full text available now: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms by Interfering With Host Metabolism, Gene Expression, and Immunity

:laugh: I saw that - and said to myself "Yup, 2nd november - that's today" Thanks for clearing that up, @Barry

In response to concerns raised by members of the Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (or encephalopathy) (ME) community, Cochrane has been considering repositioning the editorial oversight of CFS/ME reviews. I hope the overwhelming amount of research pointing towards ME not...

Apologies if it has been posted before. I've heard about it, but haven't seen this official statement from Cochrane about it. It's not dated, but listed on 3.rd place on the front page of Cochrane, so I gather the statement is new? Cochrane considering the repositioning of Chronic Fatigue...

Video with author and journalist Jørgen Jelstad. There's no doubt that ME has been a field of controversy. A lot of the problems is because very little research has been done. If you looks at numbers from USA, you'll find that one year of research into MS is equivalent to 25 years of ME...

Video with Ellen V. Piro - who founded the Norwegian ME Association 30 years ago. When she started the ME Association, ME was completely unknown. Since then there's been a big change. ME patients have received apologies from the prime minister and from the Directorate of Health. She thinks ME...

I wish it could have included something about why a disease like ME hasn't been prioritised in medical research and thus was doomed a faith as medically unexplained. I also miss a critical discussion about the term "medically unexplained" (I've just skimmed the article, perhaps it's included and...

Through positive and negative descriptions, our study participants articulate—directly or indirectly—the same basic expectations and experiences. Regarding expectations, the core message that runs through both datasets is that caregivers ought to acknowledge the lack of medical knowledge; be...

The main author, prof. in sociology Olaug Lian, published in 2015 "United we stand": Framing Myalgic Encephalomyelitis in a Virtual Symbolic Community Abstract In this article, we report on a study that seeks to explore how the contested chronic condition myalgic encephalomyelitis (ME), one of...

Sveinung Stensland is member of the Parliament and the spokesperson for issues concerning health for Høyre - the Conservative party. He is a pharmacist by education. He says he's getting more and more engaged in ME. There are many myths about the disease. He notice that the knowledge and...

Kristina Vedel Nielsen, ME patient since 2012 and author of a self help book about ME. She talks a bit about ME and how important it is to acknowledge that this is a serious disease. It's also important that health care personell understand and can help with the changes a disease like this can...

Not that I know of, but I believe Tuller's first lecture in Norway from Tuesday this week in Oslo, also was filmed and I think that one might become available on YouTube in a while.

Mette Schøyen is advisor for children and adolescents for the Norwegian ME Association. She says it's important that everyone acknowledges what ME is. That it is a serious, multi systemic disease. This must be the basis for meeting children and adolescents with ME in order for them to...