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From two days ago but I don't think it's been posted here yet: SBS Insight by Simon Del Favero: I was in denial and ashamed by my CFS Looking to the future I am heartened by the rapidly accelerating research breakthroughs that are happening internationally. Since I was first diagnosed in 2011...

2018 Campaign week from the Norwegian ME Association to increase knowledge The Norwegian ME Association is launching a week long campaign to raise awareness and knowledge about ME. It starts off tomorrow and ends Saturday. It's the first time a campaign like this has been done in Norway, and...

And I'm very grateful for you doing that, @Andy :-)

hmm - the journal is called "journal of Ayurveda and Integrative Medicine" is the article still of interest? (haven't had a chance to look at it yet)

A mother to a daughter with severe ME has written a letter-to-the-editor directed to the Prime Minister and Minister of Health. She describes her family's meeting with the health care system and asks for more knowledge about ME and more funds for research. Kjære Statsminister Erna Solberg og...

I'd actually welcome a comparative study on LP and CBT. At least in Norway prof. Wyller, the National Advisory Unit and LP coaches claim that LP has elements of CBT, and CBT has proven to have some effect against ME, ergo LP has effect against ME. If it was done properly and by independent...

And even the research council included a patient who had recovered from LP to advice them. But still prof. Wyller's application for funds to his trial on ME and LP got turned down, and there was hell. Several letters-to-the-editor and social media debate about allowing pesky patients to have a...

:rofl: No worries. Just do a STOP-movement with your hand and visualise a palm tree, and you'll be fine. It'll change your brain, honest! And it works for EVERYTHING, so the rest of your office really should join in.

This is the link about the LP review, yes? How odd, it works fine for me: https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=104336 ETA: The link in the first post is now corrected

I think it was just me - that something happened during google translation and copying it to the forum. The link should work now. Thanks for letting me know.

Some thoughts about NICE In fact, a robust debate about ME/CFS treatments rooted in scientific principles would be welcome, since such a debate has been largely absent in the UK. But it would require the NICE committee to include, in addition to a group of apparent GET/CBT proponents, a...

The research conference will take place Nov. 26th-27th As far as I know it was the ME Association's initiative to organise the research conference last year together with the National Competence service for CFS/ME and the Norwegian Institute of Public Health. Afterwards they decided to repeat it...

Merged thread The Norwegian ME Association withdraws tonight as co-organisers of research conference The Norwegian ME Association has been working on organising a two day research conference next week in collaboration with the National Competence service for CFS/ME and the Norwegian Institute...

Is this in any way similar to Suramin or something completely different?

Family and friends of ME patients have written an open letter to the Minister of Health urging him to help them get back their loved ones. Some of those who have signed the letter are celebrities (actor, musician). The letter gives good information and background story for the unbearable...

Already back then? And now it's even easier to find fellow participants and share notes.

Interesting feature on a topical issue. It's getting easier for patients that participates in clinical trials to connect online and share experiences and information. But what if that leads to unblinding a trial? Also discusses how difficulties in recruiting patients for clinical trials has led...

Review article which is provisionally accepted. Full text published soon. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the era of the human microbiome: persistent pathogens drive chronic symptoms by interfering with host metabolism, gene expression and immunity ME/CFS may be driven by...

Review article is provisionally accepted and full text will be published soon Neuroinflammation and cytokines in ME/CFS: A critical review of research methods We argue that the vast majority of ME/CFS neuroimaging has failed to use optimal techniques for studying brainstem, despite its...

WTF?