We don't want any bogus treatments you idiot so until there's one that works just leave us alone to get on with pacing because it works as a management tool, we know, we are the ones using our own bodies, and stop filling up public policy with bullshit bogus pseudo science that makes us worse...
He probably thinks hes got nothing to lose now. He will either fall from grace or pull off a great escape as so much of the establishment need to keep propping up the BPS model, so he might as well lose it with everyone.
The therapists quality of life will improve immensely sitting working from home nodding every few minutes and drinking coffee and having a fully booked client schedule at £50-£100 an hour. It pays much better than reiki and lets them put to use that little therapy room in the house they set up...
Remember they had trouble recruiting enough people at all initially and were given extra time to recruit people via GPs etc.
I cant remember the full details but I recall something about them possibly tweaking the definition to get more/enough patients recruited.
I am just going to say I told you so, on the subject of AfME. All that rubbish when they came here claiming to engage with people was utter bollocks and see through.
To be frank I cant believe anyone believed that what they were doing here was engaging.
I told you so!!!!
No Mr Sharpe, Tuller is doing what journalists do, you know investigate, collect evidence, put claims to both parties in a debate to give them a chance to comment, dig deeper show scepticism, keep the public informed and all that.....the fourth estate.... ? No?
If the research is trash the job...
Just a suggestion, would it be best to capture the most recent tweets and work backards as the latest exchanges seem to contain the biggest humdingers?
Whatever you call it whether its a model a theory or testing of a hypotheses (which is supposed to be designed to challenge the theory) therefore making it falsifiable, the BPS are busy claiming there is a functional component to every single disease anyway so that they can add MUS onto MS or...
I rather get the feeling Wessely is going to be offering to meet Mike Godwin for beer, wine coffee and tea any minute now.
That will be a clean sweep, how much will you donate to charity for that @TiredSam?
He will be on the phone to Wessely now saying.... 'how can you lie like that you should show some integrity', then they will both laugh, then there will be a 3 second silence then Sharpe will say, 'you know i'll take you down with me you bastard!!!'....then another 3 second silence follow by the...
"Nothing to do with me Mike I didn't do PACE ", now that the shit is really hitting the fan. Except that's not strictly true he was involved in PACE, aswell as other things, he recruited patients to it and lets not forget his follow up statements about PACE being "a thing of beauty".
Both...
Sharpe has primarily moved his claims about the PACE trial to "however you define recovery CBT and GET are the proven best treatments".
Alsorts of linguistic claims can be made from this notion, like saying if one out of a hundred people recover from treatment x and two out of a hundred recover...
That may be true but there's also alot of solid research out there across all other medical fields.
Can anyone point to the DSM and show any solid/falsifiable research for any single "diagnostic" label in it?
Its not only a matter of whether the actual event is rare or not its the fact that the threat applies equally to all parents of children with ME and potentially causes them to toe the line or live in fear because of the BPS crowds reinforcement of their beliefs using the PACE study.
In the...
Utter delusion, the PACE trial has maintained the nightmare and reinforced it on people until recently when a number of academics, doctors and journalists woke up to it and clinical practice may actually now get changed simply because of the critiques of the bogus trial that the BPS crowd touted...
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