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  1. large donner

    Michael Sharpe skewered by @JohntheJack on Twitter

    @Mike Godwin Yes Mike and Wessely is on record telling influential people that benefits are bad for people with ME, I am sure someone can link you to that. Also its not just ME patients because the PACE trial was used to grow the dubious catch all brand of "CFS" preparing for the illness...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    How the hell did I end up on twitter without even being on twitter? Nice to see me totally quoted out of context too. My point was like asking if faith healers had got hold of healthcare policy and then everyone pointed out their rubbish would it make sense to do more faith healing studies and...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Well if you have had thirty years and taken all the funding and still cant prove your treatments work surely no one could think running another trial would be the solution. I'm not going to out it past some people to suggest it though.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Is anyone else worried that the "solution" to all this will be, "the PACE trial was done so badly it all needs to be funded and done again"?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    I think Wessely is being left swiped alot. Is he mixing up twitter with a dating app?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    If he invites me for a kebab and pays I'll throw the whole fucking lot of you under the bus.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    By all accounts he invites you out then makes you pay. I wonder how strong the beer was he wanted you to drink.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    @Mike Godwin I think the notion Sharpe and Wessely have been tweeting out that PACE was "just a trial and hasn't even impacted current policy" is disingenuous and needs to be pointed out. If it wasn't for patients initially pointing out the flaws they would still be going around claiming...
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    My conversation on twitter with cfs research and prof. Michael Sharpe

    He's missing the point here, they haven't released the true data for harms found. Also CBT was used as a brainwashing tool to illicit a required response. Namely "I'm better cos if I don't say I am I wont get better and wasn't ill anyway."
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    Michael Sharpe skewered by @JohntheJack on Twitter

    "No consensus about aetiology", yet healthcare policy is based purely on the subjective unblinded rantings of a few powerful industry psychiatrists who advise the DWP and private insurance industry and claim that the cause is false illness beliefs that can be cured by CBT and GET even though...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Bio - ME Psycho - Psychiatrists talk rubbish and publish pseudo science Social - DWP take people benefits away A widely accepted framework for denying illnesses.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Ah I see, so you and your mates are using the bastardised version then?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    In the meantime carry on pacing and stop lying about the efficacy of GET and CBT, release all the data and get ready for NICE to change the guidelines.
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    NICE guideline on ME/CFS: diagnosis and management: draft scope consultation period and lay member recruitment period

    Not sure if this is good or bad. It could give the BPS crowd time to spin more crap after hearing what they need to defend themselves over.
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    Briefing paper for parliamentary debate.

    I'm not sure they need us to believe or disbelieve anything to claim there's nothing wrong with us that can't be cured by exercise and CBT. They believe it or at least use that model, that's the point. Behaviour changing therapy would still be used they would just claim it was teaching us what...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    It seems he does say so yet he then span it to start the bidding for more CBT and GET. He also tries to say all we need is more and occupational therapy, you know those people who put an extra cushion on your chair at work in agreement with your employer to enable disability equality in the...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Our magic homeopathic remedy that was watered down 1 part magic potion to one ocean didnt work, therefore its obvious we need to give you two droplets instead of one.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Since then they have learned we need more CBT and occupational therapy to get back to work? According to which trial? So the lesson from PACE was more CBT and OT is needed? Even if it was true how come they didn't claim that in the last 30 years. The man's just delusional.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    He is basically trying to advocate for "there is no mental or physical illness everything is both". Yet when it comes to treatment only psychiatry is right. :banghead:
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