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  1. mango

    News from Scandinavia

    Blog article by Staffan, a person in Sweden living with post covid. He's asking for better healthcare, more research, and layers of protection against infection. (ME is mentioned.) Worth the read :thumbsup: Vi postcovidsjuka göms undan när ingen vill erkänna Sveriges misstag...
  2. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Skrivelse till Socialstyrelsen angående nytt kunskapsstöd – brister i beredningsprocessen https://covidforeningen.se/skrivelse-till-socialstyrelsen-angaende-nytt-kunskapsstod/ Google Translate, English ETA: Excellent letter! Definitely worth reading in its entirety :thumbup: I was very...
  3. mango

    Book: Living Well with Orthostatic Intolerance by Peter C. Rowe

    Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment by Peter C. Rowe Expected publication August 27, 2024 "The essential guide to living with orthostatic intolerance Orthostatic intolerance (OI) describes a group of circulatory disorders whose symptoms are...
  4. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Socialstyrelsen: Så bör vården hjälpa postcovid-patienter https://lakartidningen.se/aktuellt/nyheter/2024/08/socialstyrelsen-sa-bor-varden-hjalpa-postcovid-patienter/
  5. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "030 - Does ME/CFS involve low brain oxygen? Some brand new data from my lab using a cerebral perfusion scan to detect low brain oxygen. This scan is being used to determine (or rule out) poor brain oxygen in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). - Jarred Younger"
  6. mango

    News from Scandinavia

    On Swedish TV tonight, 19 August: Fråga doktorn SVT1, 19 aug kl 18:45-19:30 https://www.svtplay.se/fraga-doktorn
  7. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Paywalled news article in Dagens Medicin, a news website for healthcare professionals. Socialstyrelsen: Så bör postcovid och liknande tillstånd hanteras "Kunskapsläget är fortfarande skralt, men Socialstyrelsen lyfter vikten av symtomlindrande behandling så långt det är möjligt vid postcovid...
  8. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Interaktiv karta Insatser vid postcovid och andra närliggande tillstånd och syndrom Den interaktiva kartan är baserad på rapporten Insatser vid postcovid och andra närliggande tillstånd och syndrom – en kartläggning...
  9. mango

    News from Scandinavia

    Opinion piece in Läkartidningen yesterday (before the new guidelines were published). Signed by clinicians and researchers: Lisa Norén, Artur Fedorowski, Marcus Ståhlberg, Judith Bruchfeld and others. ME is not mentioned specifically, other than "other post infectuous conditions"...
  10. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    RME, the Swedish ME Association, has previously been involved in developing these guidelines. They published a short news article on their blog today.
  11. mango

    News from Scandinavia

    Pretty big news today. Socialstyrelsen, Sweden's National Board of Health and Welfare, published national guidelines for post covid, post influenza, post sepsis, post intensive care syndrome, ME/CFS and PANS/PANDAS today. Forum thread here: Socialstyrelsen's new national guidelines for...
  12. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    News article by the National Board of Health and Welfare (in Swedish) https://www.socialstyrelsen.se/om-socialstyrelsen/pressrum/press/sa-far-patienter-med-postcovid-bast-vard/
  13. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Auto-translated from the report: "Postcovid and other related conditions and syndromes Executive summary This knowledge support covers post-covid, post-influenza, post-sepsis, post-intensive care syndrome, chronic fatigue syndrome (ME/CFS) and paediatric acute-onset neuropsychiatric syndrome...
  14. mango

    Sweden: Socialstyrelsen's new national guidelines for "Postcovid and other related conditions and syndromes" including ME/CFS

    Socialstyrelsen, Sweden's National Board of Health and Welfare, published national guidelines for post covid, post influenza, post sepsis, post intensive care syndrome, ME/CFS and PANS/PANDAS today. As many of you already know, there were no national guidelines for ME in Sweden, so this is...
  15. mango

    News from Scandinavia

    Bluffen med kändisarnas laserbehandling: ”Jättetragiskt” https://www.expressen.se/nyheter/sverige/bluffen-med-kandisarnas-laserbehandling-jattetragiskt/
  16. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    029 - We need research on severe ME/CFS now "25% of myalgic encephalomyelitis (ME/CFS) sufferers reported being homebound, and 4% report being bedridden. Research is urgently needed to better understand these severe cases of ME/CFS. Below are links to the two open-access articles I mention in...
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