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I think a sensible reading is curative = aiming for recovery. I think that is clear enough in the guideline for anyone with sense but...

yup

No, but if it is accepted that CBT has a place I think it would have been very hard on the committee to argue more precisely for what was not to be allowed. I personally would have preferred to see no mention of CBT but I was not on the committee. There is a wide range of opinion. A lot of...

The same. She resigned, but after signing up to the revised guidelines. Why she resigned nobody seems to know.

I don't think it will be. I agree that a clearer distinction would have been helpful However, I suspect that getting that through the committee with a clinical psychologist used to the old ways on it may have been a bridge too far. I don't know the story but I suspect that the guideline as it...

Maybe with global warming levels of Co2 will b e so high that life will go backwards. Perhaps we can look forward to dinosaurs vlove-ing again and dodos strutting across the croquet lawn.

That makes a lot of sense. I was thinking of the phenomenon of 'second wind' where agonising exhaustion at 8,000 metres in a 10,000 metre race can suddenly be replaced by a rhythm that will get you to the finishing line and even with a reasonable placing. I think ME must have something to do...

By talking to them?

Whoever is interested. An interesting point was made both by a health professional whose identity might be guessed and by a NICE committee representative at RT in response to the suggestion that ME/CFS needs to be dealt with by people properly trained in eg. rehabilitation. The response was...

Yes this is exactly what I am trying to say. More than that, dysregulation is always weird and unknown. Solving it has nothing to do with pushing things according to regulation. A broken thermostat does not keep the temperature right just because you put it very high when you are cold and very...

I agree with all of that. But you have to start somewhere. For me the situation is very reminiscent of that for RA in the early 1980s. At least there is a desire to look at some physiological systems about which we can generate testable theories of going wrong. The current explanations are not...

I repeat myself but it helps to try to get clearer what I want to know A theory of dysregulation needs two parts. 1. An account of the mechanisms that explain how things are normally controlled (homeostatic). 2. An account of a quite different mechanism that explains why in disease the...

Hampstead is lovely. But it is a favourite place for people into the woo of psychologising. There are lots of other sorts of people there too

Yes, but that's bit like saying there are some nice people living in Palm Beach.

In effect there were two physician and two GP representatives at RT. My reading now is that NICE were confident enough of their position to invite a genuinely representative range of objectors (the main comments were from physicians and GPs), being just about able to make that fit protocol. They...

Yes, 'emotional dysregulation' is an unhelpful red herring here. The Yorkshire group make it explicit that they talk about dysregulation the way I do - applicable to immunology, kidney disease or whatever is not being regulated properly. If I was asked how to categorise ME/CFS I might well say...

I am having another look at this document on dysregulation from BACME. I think some of it is problematic but I am warming to the general idea of framing ME as a dysregulation. Dysregulation is quite a good way to describe hypertension, rheumatoid arthritis, asthma, cancer, diabetes, you name it...

Perhaps the pantomime season has just started early "Oh yes it is..."

This is almost certainly an artefact of sampling. The conclusions look naive. It all depends on who has had an ANA pattern screen done and why.

My guess was that he lives in Hampstead. It turns out he lives in Hampstead. Just along from the Freud Museum.