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Yes they are accurate about some of what they don’t know. If only they realised what they are suggesting is cliched ‘advice’ for people who aren’t ill. it’s like saying why don’t you try not being ill with me/cfs and you’ll feel less fatigued with these. the classic pretending symptoms of an...

The other problem with that term is that is also relates to the economic phenomenon, where people would have 'more' in the boom. The issue is never of course that when getting ill people have 'more'. But it seems very reasonable, including for other illnesses they might have, that they would...

JUst read this blog post: I don't feel like I'm getting much... - Anna / M.E. myself and I | Facebook and it is brilliant at making a similar point, but better - at underlining how unhealthy the paradigm that some clinics were giving out in the past can be

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Bps beliefs - a functional brain aberration I can’t believe the disgusting phrases these people think they can get away with pretending they aren’t designed to be bigoted and to incite insults

Precisely. All of this sticking of ideas on people is what is so terrible. It always feels like the opposite of what is actually going on and can’t have come from interviewing real people and actually hearing them would it happen for other conditions that it is acceptable that they would say...

o wow they are determined to get their money's worth out of that same old material This is basically just trying to say PEM is a false belief maybe with adding in that real nonsense theory about 'the expectation effect'. Of course I think that the perfect paper that debunks the suggestions of...

thanks for the additional info. so there were letters that prompted a closer look to take place. that seems feasible, I'm also slowly learning that the list of what actually prompts 'retraction' vs doesn't can seem to a layperson somewhat eccentric to 'whether it matters' etc

Yes. Toxic wellness. That’s it! Justified by poor methods looking for confirmation bias. I think pacing caught on even with the behaviorists because it's patronising to be frank. And simplistic. It is an ambiguous term that can be twisted to infer we 'just don't manage our energy' rather than...

Does the day of the exercise test actually include the test? I assumed it included walking to and from, and agree that you've probably taken the day off work or it is a weekend where they might have been doing something similar going by the graph. I agree on the moving other tasks, and we've...

I agree with @Hutan noting their son returning to school eventually and slowly collapsing, having tried to do so over a space of time. And note that it is interesting the top article talks about 12-14 days being the actual point they noted a reduction. I think this serves more as a warning for...

interesting. These things seem pretty significant. I wonder how it came about? - are we assuming that someone else spotted it and wrote to them, but then such a reviewer would need to have been able to access the raw data? I had a quick look at the conclusion/discussion of the original to see...

This is interesting but it just leaves me with a lot of questions, some of which might be answered if I could see more of the article. I get the impression the actometer axis isn't 'number of steps in a day' [on basis of it being eg 40], so would like to know what is actually in it. I'm...

Brilliant, useful to be able to note this. The other issue I have with it, and the behavioural approach even using the term 'pacing' instead of energy envelope is that it doesn't acknowledge or understand that most have things they have to 'save up for' and these are things that normal people...

2. The attitude and approach of those who might have been the firsts in the areas of only being CBT show themselves up I think in only focusing on whether whatever is being rammed down the neck is being effectively forced in, and not whether it's good that it is. Which was one of the points of...

What I can't get past with this guy is the idea he is selling Crawley and White's (and his) line of 'the issue is delivery isn't being monitored' as if it failed because it wasn't being monitored. The idea 'people weren't doing it properly' and following instruction. It needed to be...

Anyway I note this because it flags a few issues up for me: 1. That doesn't even qualify you to begin messing around doing the cliche people assume such degrees are about of 'analysing people' in fact it teaches you the opposite and how intrusive it is. And how early days things are with saying...

Thanks for posting this. I think it is relevant to the approach to research and potentially vulnerability to confirmation bias (the odd person raving that 'they'd be lost without their TENS machine doesn't mean those people aren't also taking painkillers or other things they require, and doesn't...

So if I was just working based on logic with those two statements if Whitney had a lower BH4 /biopterin vs HC/norm and this says BH4 is strongly elevated compared to HCs the condition for both to be true would involve high biopterin. Given Whitney's % is half of norms then far more than double...

This is exactly the reccommendation of the Crawley et al (2013) which included Peter White paper's sleight of hand. Where they basically did another arm of the PACE trial at the same time (but reported their results slightly later) and found out that whilst they could manage to fudge a small...