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  1. Amw66
    Post

    Central Sensitization in Neurological, Psychiatric, and Pain Disorders: A Multicenter Case-Controlled Study, Suzuki et al, 2021

    Not my idea.i recall Mike Ekzakker flagged this up a couple of years ago, how the term was being bastardised to shift agendas I didn't...
    Post by: Amw66, Mar 4, 2021 at 8:29 AM in forum: PsychoSocial ME/CFS Research
  2. Amw66
    Post

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    Amitriptyline to under 14s?
    Post by: Amw66, Mar 3, 2021 at 7:28 PM in forum: PsychoSocial ME/CFS Research
  3. Amw66
    Post

    Central Sensitization in Neurological, Psychiatric, and Pain Disorders: A Multicenter Case-Controlled Study, Suzuki et al, 2021

    CSS will follow on from FND as an additional diagnosis The subverting of language by whatever means is usually the first step.
    Post by: Amw66, Mar 3, 2021 at 2:25 PM in forum: PsychoSocial ME/CFS Research
  4. Amw66
    Post

    Cost-effectiveness of Interventions for Chronic Fatigue Syndrome or Myalgic Encephalomyelitis: A Systematic Review.., Cochrane, Crawley et al, 2021

    words fail me ( a recurrent effect of EC's work) what a clusterf***
    Post by: Amw66, Mar 3, 2021 at 2:22 PM in forum: PsychoSocial ME/CFS Research
  5. Amw66
    Post

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Thank you @Michiel Tack Nonsense shown for the nonsense it is succinctly
    Post by: Amw66, Mar 2, 2021 at 5:28 PM in forum: Information for NICE guidelines
  6. Amw66
    Post

    Aluminium based adjuvants and a disease hypothesis by Gherardi

    Interesting. Vaccines with longer timeframes ( tetanus, hpv, hepatitis etc) have higher levels of adjuvant and some can trace illness back to...
    Post by: Amw66, Mar 2, 2021 at 5:27 PM in forum: BioMedical ME/CFS Research
  7. Amw66
    Post

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study): 2021 Stephenson and Crawley

    https://www.theguardian.com/society/2021/mar/02/long-covid-uk-children-date-cause-concern-scientists-say ETA Stephenson interviewed Other quote...
    Post by: Amw66, Mar 2, 2021 at 12:24 PM in forum: Epidemics (including Covid-19)
  8. Amw66
    Post

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    perhaps also a different tax liability - if its compensation then it may not be earnings...... I had a friendd at uni who got round renting rooms...
    Post by: Amw66, Mar 1, 2021 at 4:37 PM in forum: Information for NICE guidelines
  9. Amw66
    Thread

    Engaging with severly affected - surveys etc ( PLP survey coming up)

    Advocacy work can involve surveys - online/ telephone/ hard copy. Much of the time, those who are most severly affected can find it difficult to...
    Thread by: Amw66, Mar 1, 2021 at 4:31 PM, 1 replies, in forum: General Advocacy Discussions
  10. Amw66
    Post

    Effects of Post-Exertional Malaise on Markers of Arterial Stiffness in Individuals with ME/CFS: Bond et al 2021

    My daughtergets airhunger during PEM. As inflamed glands are also a feature of PEM ( to the extent that you could map a physiology lecture from...
    Post by: Amw66, Mar 1, 2021 at 1:56 PM in forum: BioMedical ME/CFS Research
  11. Amw66
    Post

    BPS attempts at psychologizing #LongCovid

    Given history, perhaps key long hauler advocates should be made aware of this ?
    Post by: Amw66, Feb 27, 2021 at 2:11 PM in forum: Epidemics (including Covid-19)
  12. Amw66
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Peculiar to ME is the double spike in female incidence which could be linked to hormonal influences of puberty and post puberty ( pregnancy etc)....
    Post by: Amw66, Feb 26, 2021 in forum: Epidemics (including Covid-19)
  13. Amw66
    Post

    The biology of coronavirus COVID-19 - including research and treatments

    If you look at recent press conferences , noticeably in UK, there is a definite reframing to the hospitalization and death angle. If you don't...
    Post by: Amw66, Feb 26, 2021 in forum: Epidemics (including Covid-19)
  14. Amw66
    Post

    CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT) , Hall, Crawley et al, 2021

    Perhaps of interest as the appendix functions as part of the immune system ( and is not something left over from its fetal role)
    Post by: Amw66, Feb 21, 2021 in forum: Health News and Research unrelated to ME/CFS
  15. Amw66
    Post

    The biology of coronavirus COVID-19 - including research and treatments

    [MEDIA]
    Post by: Amw66, Feb 20, 2021 in forum: Epidemics (including Covid-19)
  16. Amw66
    Post

    Article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Human Herpesviruses Are Back! 2021, Ariza

    Perhaps different in paediatrics ( my daughter was 15 ) . Just states positive, when I queried the paediatrician she advised that they don't do...
    Post by: Amw66, Feb 20, 2021 in forum: BioMedical ME/CFS Research
  17. Amw66
    Post

    Article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Human Herpesviruses Are Back! 2021, Ariza

    EBV testing here is just positive or negative. They don't do serology to know which virus caused it.
    Post by: Amw66, Feb 20, 2021 in forum: BioMedical ME/CFS Research
  18. Amw66
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    Given the increasing number of differences we find between the sexes- Why did we ever think the response would be the same ? Interesting to...
    Post by: Amw66, Feb 20, 2021 in forum: Epidemics (including Covid-19)
  19. Amw66
    Post

    Possibility of ME or PVFS after COVID-19, Long Covid

    They are still doing this .
    Post by: Amw66, Feb 20, 2021 in forum: Epidemics (including Covid-19)
  20. Amw66
    Post

    Gulf War Illness - causes

    I can remember one successful legal action to retain pension provision by a Scottish soldier who got GWI without going to the gulf. It was...
    Post by: Amw66, Feb 20, 2021 in forum: BioMedical ME/CFS News
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