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  1. Jenny TipsforME
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    @TiredSam what I mean is I was explaining my perception. Only I can know my perception. I accept that other people have different perceptions. How...
    Post by: Jenny TipsforME, May 30, 2019 in forum: Moderated Threads
  2. Jenny TipsforME
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    2 day VO2 max? Consistently increased steps and general activity over time? I was stating my perception so I’m not sure how you can know the...
    Post by: Jenny TipsforME, May 30, 2019 in forum: Moderated Threads
  3. Jenny TipsforME
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I think this would be interesting to do Ron’s test even though there’s not a direct before comparison. It would be curious if you still show a...
    Post by: Jenny TipsforME, May 30, 2019 in forum: Moderated Threads
  4. Jenny TipsforME
    Post

    One-sided weakness

    From Wikipedia
    Post by: Jenny TipsforME, Feb 1, 2019 in forum: Other Symptoms
  5. Jenny TipsforME
    Post

    One-sided weakness

    I don’t think this explains your one sided weakness but as an aside re dopamine, trawling through my whole genome I’m homozygous for a pathogenic...
    Post by: Jenny TipsforME, Jan 31, 2019 in forum: Other Symptoms
  6. Jenny TipsforME
    Post

    Suddenly feel completely well

    @Jenny you sound quite similar to me. I’ve been 95% well before too, not entirely symptom free but able to lead a normal lifestyle. My steps down...
    Post by: Jenny TipsforME, Jan 28, 2019 in forum: Immunological
  7. Jenny TipsforME
    Post

    Suddenly feel completely well

    I got the impression with @Jenny she knew what was going on and wanted to document before the virus that there was brief remission? It sounds less...
    Post by: Jenny TipsforME, Jan 28, 2019 in forum: Immunological
  8. Jenny TipsforME
    Post

    One-sided weakness

    When I have weakness or paralysis it’s symmetrical. It can be localised, but it would be both legs or both arms. Things people mentioned to me...
    Post by: Jenny TipsforME, Jan 26, 2019 in forum: Other Symptoms
  9. Jenny TipsforME
    Post

    NICE guidelines - Evidence of harm from Graded Exercise therapy

    Kirke 2017 was what I was going to suggest Karen! A graph from your paper is often what we use for #MEAction stuff.
    Post by: Jenny TipsforME, Dec 23, 2018 in forum: Information for NICE guidelines
  10. Jenny TipsforME
    Post

    Clinical Therapeutics: Rituximab Serum Concentrations and Anti-Rituximab Antibodies During B-Cell Depletion Therapy for CFS/ME - Rekeland,Mella et al

    Yes reassuring because rituximab could have been instantly dropped without understanding the discrepancy between results.
    Post by: Jenny TipsforME, Nov 29, 2018 in forum: BioMedical ME/CFS Research
  11. Jenny TipsforME
    Post

    Hand grip strength as a clinical biomarker for ME/CFS, 2018, Nacul et al

    Also previously discussed here (or the other place) most (all?) of us who’ve had genetic testing seem to have a tendency to fast twitch rather...
    Post by: Jenny TipsforME, Nov 27, 2018 in forum: BioMedical ME/CFS Research
  12. Jenny TipsforME
    Post

    Hand grip strength as a clinical biomarker for ME/CFS, 2018, Nacul et al

    Firstly a personal anecdote is my PE teacher had one of these devices, I was the strongest in my class on this HGS test (pre ME). It was useful...
    Post by: Jenny TipsforME, Nov 27, 2018 in forum: BioMedical ME/CFS Research
  13. Jenny TipsforME
    Post

    Biomedicine & Pharmacotherapy: CFS: Suggestions for a nutritional treatment in the therapeutic approach - Geir Bjørklund et al - 2018

    Supradyn is mentioned specifically as well as other general things. I wonder why? [MEDIA] It’s from this study...
    Post by: Jenny TipsforME, Nov 8, 2018 in forum: BioMedical ME/CFS Research
  14. Jenny TipsforME
    Post

    Biomedicine & Pharmacotherapy: CFS: Suggestions for a nutritional treatment in the therapeutic approach - Geir Bjørklund et al - 2018

    I’ve not heard of a large undiagnosed Parkinson’s subgroup in ME. Is this nonsense? The reference is in Russian (which doesn’t mean it’s nonsense,...
    Post by: Jenny TipsforME, Nov 8, 2018 in forum: BioMedical ME/CFS Research
  15. Jenny TipsforME
    Post

    Who said: don't bother testing patients?

    It looks like an interesting book, available on Amazon for £8.99 [MEDIA]
    Post by: Jenny TipsforME, Nov 7, 2018 in forum: General ME/CFS News
  16. Jenny TipsforME
    Post

    Who said: don't bother testing patients?

    Peter White said about not doing tilt table test, though gave the reason it was too demanding for us...
    Post by: Jenny TipsforME, Nov 7, 2018 in forum: General ME/CFS News
  17. Jenny TipsforME
    Post

    Guardian 'diabetes is biopsychosocial'

    BPS is a way of seeing health/illness/disability. It is a general model. So as a comparison you have the Social Model of Disability and the...
    Post by: Jenny TipsforME, Oct 25, 2018 in forum: Health News and Research unrelated to ME/CFS
  18. Jenny TipsforME
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I’ve written a blog post about my attempt to understand https://tipsforme.wordpress.com/2018/10/13/understanding-the-ido-metabolic-trap-hypothesis
    Post by: Jenny TipsforME, Oct 13, 2018 in forum: BioMedical ME/CFS News
  19. Jenny TipsforME
    Post

    Trying Again. What First? D-Ribose? BCAA's?

    @Trish so how does Rule 5 fit with a thread like this? I wouldn’t interpret sharing experiences of supplements as medical advice (because anyone...
    Post by: Jenny TipsforME, Sep 26, 2018 in forum: Other: Methylation; B12; Glutathione; GcMAF
  20. Jenny TipsforME
    Post

    Jarred Younger confirms neuroinflammation in brains of ME patients

    It is slightly puzzling but Psychology can be more like hard science than people expect. Eg neuro lectures can be difficult, you learn the anatomy...
    Post by: Jenny TipsforME, Sep 26, 2018 in forum: BioMedical ME/CFS News
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