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  1. Keela Too
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    :) Thank you.
    Post by: Keela Too, Mar 29, 2021 in forum: Information for NICE guidelines
  2. Keela Too
    Post

    Horizontal office chair, recliner, laptop stand etc.

    That wasn’t my experience with this one, and I used it daily for at least 3 years. Still have it, but it is used less often now. Perhaps it...
    Post by: Keela Too, Mar 25, 2021 in forum: Work, Finances and Disability Insurance
  3. Keela Too
    Post

    Horizontal office chair, recliner, laptop stand etc.

    I think this is the chair from my 1st photo. Though it seems to have gone up in price! There are other ones on Amazon if you check....
    Post by: Keela Too, Mar 25, 2021 in forum: Work, Finances and Disability Insurance
  4. Keela Too
    Post

    Horizontal office chair, recliner, laptop stand etc.

    Remember support for your arms too, I have used rolled up towels and allsorts to lift my elbows to a height that is comfortable for typing without...
    Post by: Keela Too, Mar 25, 2021 in forum: Work, Finances and Disability Insurance
  5. Keela Too
    Post

    Horizontal office chair, recliner, laptop stand etc.

    One comment I will make, is that it is much harder to extract yourself from a reclined position. So honestly if your work are offering to pay a...
    Post by: Keela Too, Mar 25, 2021 in forum: Work, Finances and Disability Insurance
  6. Keela Too
    Post

    Horizontal office chair, recliner, laptop stand etc.

    Here’s a set up I used for a while. It’s a padded chair with a foot stool. I added 2 cushions, one square one under me, and then an upright...
    Post by: Keela Too, Mar 25, 2021 in forum: Work, Finances and Disability Insurance
  7. Keela Too
    Post

    Covid-19 vaccination experiences (includes discussion of the possibility that the vaccine improves Long Covid)

    I had Pfizer on Wednesday (17th March) and had a bit of tenderness at the vaccination site, and was a bit sleepy that afternoon. Since then I’ve...
    Post by: Keela Too, Mar 22, 2021 in forum: Epidemics (including Covid-19)
  8. Keela Too
    Post

    New Garmin “High Intensity Exercise” monitoring and what it showed my body is doing

    Interesting. I have a Fitbit, which seems to measure much less than your Garmin. However it regularly tells me I’m having cardio workouts, when...
    Post by: Keela Too, Feb 23, 2021 in forum: Post-Exertional Malaise, Fatigue, and Crashes
  9. Keela Too
    Post

    COVID-19: UK volunteers to be deliberately exposed to COVID in world-first trial

    I saw! Horrific! Why would they do that? I wonder what compensation will be offered when (& it is likely when, not if) some of them get long covid?
    Post by: Keela Too, Feb 17, 2021 in forum: Epidemics (including Covid-19)
  10. Keela Too
    Post

    Migraine headaches in Chronic Fatigue Syndrome (CFS): Comparison of two prospective cross-sectional studies: Baraniuk et al 2011

    I’ve had migraines since childhood. They were never that frequent, and often associated with exposure to heat or bright light. Which means, I...
    Post by: Keela Too, Feb 8, 2021 in forum: Other Symptoms
  11. Keela Too
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    I think I saw that tweet (tho I’m blocked now as part of her mass blocking) but if I remember correctly the tweet said something along the lines...
    Post by: Keela Too, Jan 31, 2021 in forum: General ME/CFS News
  12. Keela Too
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    [MEDIA] “Through the advice and support of our wonderful ME community, one man has successfully avoided long term disability. If he dodged the...
    Post by: Keela Too, Jan 28, 2021 in forum: Epidemics (including Covid-19)
  13. Keela Too
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    I wasn’t blocked when I checked about an hour ago, but am now! :(
    Post by: Keela Too, Jan 26, 2021 in forum: General ME/CFS News
  14. Keela Too
    Post

    First time in remission with ketogenic diet

    Keto helped me - I think. It has in no way been a cure, more a feeling that I do better. My step count didn’t improve much long term, if at...
    Post by: Keela Too, Dec 28, 2020 in forum: Alternative Therapies
  15. Keela Too
    Post

    Question: Coronavirus & home sewn masks?

    Interesting - though it is talking about surgical masks rather than washable ones. I seem to remember reading that washing fabric masks separates...
    Post by: Keela Too, Dec 16, 2020 in forum: Epidemics (including Covid-19)
  16. Keela Too
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    :)
    Post by: Keela Too, Dec 16, 2020 in forum: Information for NICE guidelines
  17. Keela Too
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I second that. I’d also like to say that, in the absence of being able to get into discussions, I have found the various thoughts, experiences...
    Post by: Keela Too, Nov 10, 2020 in forum: Information for NICE guidelines
  18. Keela Too
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Tomorrow then!
    Post by: Keela Too, Nov 9, 2020 in forum: Information for NICE guidelines
  19. Keela Too
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    @adambeyoncelowe It’s my understanding that we can’t really “discuss” the draft guideline - at least not in the way I would have done prior to...
    Post by: Keela Too, Nov 9, 2020 in forum: Information for NICE guidelines
  20. Keela Too
    Post

    Question: Coronavirus & home sewn masks?

    I made the mask from the video above. It’s quite quick to make, but I didn’t find it comfortable as it presses on my nose. Back to the old...
    Post by: Keela Too, Oct 29, 2020 in forum: Epidemics (including Covid-19)
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