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There is a doctor here, owner of a private clinic for HBOT, who has been popping up in the media recently, promoting HBOT as a treatment for long covid. (Interestingly, she is a psychiatrist originally.) To prove her point, she says there have been double-blinded placebo controlled studies that...

They also seem to have a "similarity score", meaning similarity of people participating. A lot of this seems to be based on Reddit posts, basically what people reported there about the different treatments they tried.

One of the very few articles from Hungary where a doctor talks about long covid (so the article is not a translation of some foreign article about long covid, which is much more common, but original stuff - the latter is really rare). The doctor in the article is Gábor Markó, a neurologist and...

My short-term memory seems to be quite badly affected on top of the constant brain fog and concentration problems. My long-term memory is fine. I mentioned several examples in other threads on this forum about how I quite often randomly forget things I have just done or started doing and I keep...

Full title: Cognitive functioning in postural orthostatic tachycardia syndrome among different body positions: a prospective pilot study (POTSKog study) Abstract Purpose Approximately 96% of patients with postural orthostatic tachycardia syndrome (PoTS) report cognitive complaints. We...

Basically, this was one of the largest internet pirate websites you could find.

A very popular torrent website, rarbg has just shut down. This is what you can read on the website now about the reasons: Hello guys, We would like to inform you that we have decided to shut down our site. The past 2 years have been very difficult for us - some of the people in our team died...

Abstract BACKGROUND The literature is mixed about the occurrence of alcohol intolerance among patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Surveys that asked respondents with ME/CFS whether they experienced alcohol intolerance within a recent time frame might...

Medical Xpress: Study starts to unravel stigma around chronic fatigue syndrome "It revealed the proportion with mental health problems was smaller than might have been expected: there was no evidence of mental health problems in three quarters of the people developing the unexplained...

"About the Patient-Generated Hypotheses Journal Welcome to the Patient-Led Research Collaborative’s first issue of the Patient-Generated Hypotheses Journal. This issue is a compilation of six hypotheses plus poll results. People with Long COVID and associated conditions and caregivers of...

Does anyone have access? The Times: Thousands of ME patients ‘failed by shockingly poor NHS care’ National treatment guidelines published two years ago are still not widely implemented, says charity

Here's the webinar on YouTube:

If anyone is interested, my blood test result from this week was negative for the anti-VCA IgM and indeed significantly lower than last year, meaning I got a very normal ("had EBV at some point in the past") result. I guess this value is something that probably fluctuates over time, at least for...

This is just an abstract from a conference (31st Meeting of the European Society of Paediatric Clinical Research) but I'm putting it here in case anyone is interested. From Semmelweis University.

Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multifaceted condition that affects most body systems. There is currently no known diagnostic biomarker; instead, diagnosis is dependent on application of symptom-based case criteria following exclusion of any...

Maybe it is not the same for everyone but personally I could just click on the "read the full article" button and voilá, I could read it. I think before that there was also some pop-up trying to get me to subscribe but I could just close that too.

How learning to treat Long COVID can help those struggling with Chronic Fatigue Syndrome as well Some experts say the current crisis of Long COVID is related to our government’s neglect of similar post-acute infection chronic illnesses like ME/Chronic Fatigue Syndrome in decades past...

For 'comedic' effect, this is what the governmental healthcare informational website says about the causes of CFS in Hungary, even today: Google translate: Written by someone who has no freaking idea of what this disease is but has read a couple of these weird chronic fatigue papers...

I don't know enough about the situation in Germany either but I agree with your assumption very much that respected doctors standing up for the disease probably play a role in this. The situation seems to be similar in Austria. Their ME/CFS patient org was only founded in 2017 and look how far...

From the Solve ME Facebook page: "Solve is hosting the =AZV71xmS5tuxd14ejqVRv50Hfl0gNSak7m1YkNOhnua-paIr1JQp5wva0YU1t1aPZh79Un0Z6G0w2pHsMLgfRNiCv0luZ3YD-WD9W8_YITMixbPIQgrjyfoW9A9Fh2VSyfMeUhKGD2_aGZhWvUZo0OFVFQSWcL3BZE6BkZgmbeqyJkMR9yc0tiGeRrdn3goK2QQT74Fcwz0DVrb-KBLn08Ew&__tn__=kK-R']Hope...