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I also do get that sudden drop in mood when I'm in PEM. It is like a switch that gets turned on quickly when my symptoms worsen and gets turned off the same way the moment my symptoms start to ease a bit. It is very clear to me that it has nothing to do with my actual mood or personality and...

I've just come across this paper from 2004, thought I'd share. IgM Serum Antibodies to Epstein-Barr Virus are Uniquely Present in a Subset of Patients with the Chronic Fatigue Syndrome, 2004, Lerner et al Abstract. Background: A unique subset of patients with chronic fatigue syndrome (CFS) and...

I think this is more of a case of Dunglish. :) Eg using expressions or words from your language (Dutch) that you assume to be the same in English. False friends are words that are very similar in two languages but have a different meaning and can be downright misleading, that's why they are...

She also posted it on her own Facebook page. It is subtitled in 28 languages.

Psychology Today: A Case Definition for Long COVID - Lessons from 40 years of ME/CFS research. Article by Vernita Perkins and Leonard Jason Many of the questionnaires to assess Long COVID symptoms solely measure the occurrence of symptoms, but many of the symptoms, such as fatigue, are...

And now the same article has also been published on the Gavi Vaccines Work website where we have already seen at least one particularly bad BPS-oriented article on ME/CFS recently.

Yahoo: COVID fatigue: cognitive behavioural therapy could help people manage persistent symptoms – new research The same article on the Conversation. Written by Rhiannon Phillips, a health psychologist from Cardiff Metropolitan University

I've made some calculations as Iceland seems to have a population of 380-390 000 people (yes, that's a lot less than the population of most European capitals). If we take the 0.5% prevalence of ME/CFS as fact, then they have around 2000 sufferers. So it is pretty good that they are setting up...

Bad title but good article (and the photo is a picture from a Millions Missing protest, not a sleepy secretary in front of her computer at work): People who get stuck in fatigue for months, years - and there is hardly any hope for change The article appeared on HVG, which is a well-known news...

I would be happy to have this kind of health info on an official website instead of the one that we have here, it would be an improvement indeed.

I agree. The reason why I stopped posting on Reddit is that even if I posted in a seemingly innocent subreddit (eg something about apartments etc) some people always showed up just to be rude and nasty, without even answering the question or helping in any way. It gets old very quickly. This...

BPSers are really like the hydra, aren't they? You cut one head off finally and three grow back somehow...

Fibromyalgia vs. Chronic Fatigue: Which One Are You Dealing With? “Both diagnoses are sometimes called into question as to not being ‘real’ diseases,” notes Dr. Abraham. “But that’s a misconception. Chronic pain and fatigue are real, and often debilitating, for those who have it.” To get...

(Sorry for being off-topic but I would like to echo this. I miss his insightful comments too.)

I can't access this article in New Zealand Doctor, but it cannot be anything good: Lightning Process: ‘Rewiring the brain’ It seems to be about the Goodfellow Symposium that @SNT Gatchaman posted about earlier in this thread: News from Aotearoa/New Zealand and the Pacific Islands

From the ME Association FB page: Long Covid + hypermobility syndromes + PoTS This observation comes as no surprise.... As we have been saying for many years >> PoTS (postural orthostatic tachycardia syndrome) and hypermobile joint syndromes are conditions that can both co-exist with ME/CFS...

The video worked for me.

I don't know if dr Bolognese's website mentioned ME/CFS before or not. However, I remember dr Gilete's did but after a while everything about it just disappeared from the website (MCAS is mentioned though). Maybe due to some backlash? Just speculating.

Those probably don't count as institutions like IOM, NICE or WHO are now clearly just puppets of the extremely powerful ME/CFS patient organizations, also commonly known as "some patients".

One of the LC mods gave me a screenshot of what was posted, this is the actual picture: Google translate: Do you have residual complaints after a covid-19 infection? The E-mind Integrative Neuropsychology Research Group of the ELTE PPK Institute of Psychology offers a free psychological...