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Not sure about your current symptoms but omicron gave me the worst sinusitis of my life. All my upper teeth hurt like crazy from the pressure (my head too of course but that was kind of expected) and my nasal discharge was just hard dry bits of deep red blood for days (not even a trace of other...

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia: PR3-versus MPO-ANCA-associated vasculitis, an exploratory cross-sectional study Summary Background Persistent fatigue is a common complaint in ANCA-vasculitis (AAV) patients and has a profound impact on patient's...

This whole Garner story reminds me a bit of South Park's recent Worldwide Privacy Tour episode...

In PEM I also feel slower. It feels a bit like moving in water, like there is some resistance. My body needs to work harder. However, I don't think an outside viewer would notice anything special about me. It is probably not pronounced enough for that in my case. But interestingly I can get...

Posted today on Facebook by the Serbian ME/CFS page I follow (translated by Google): This was all, but I guess we'll probably find out more soon. (Don't ask me what "crisis of consciousness" exactly is. FB, Google Translate and ChatGPT all translated it the same way.)

Yes, I guess it hasn't seen a lot of joke websites here yet, so it is probably trying to come up with something based on the information currently available to it. Edit: I've actually asked ChatGPT itself about the jokes:

Btw, ChatGPT gives a different experience in different languages. To what extent exactly, I'm not sure. But I asked it to make jokes in both English and Hungarian and in English it was actually pretty funny, it seems to be a fan of wordplay. But in Hungarian I only got really weird attempts...

I'm trying to catch up with things a bit. I didn't even really check Facebook when I was on my break for health reasons so I missed this very sad post from the Czech ME/CFS patient organization from August. Translation: Here is the Google translated version of their full announcement. If...

An interview with Dr Ádám Dénes about covid and its effects on the brain. His field is neurobiology/neuroimmunology and he is one of the people who received a grant from the Hungarian Academy of Sciences to research long covid. He is investigating the role of microglia at the Institute of...

After a quick glance, this seems to be worse than the one created for adults with LC. CFS is mentioned but they don't really seem to know what they are talking about: There is a long list of studies with a short summary of their findings for each. Here CFS is mentioned again as such a...

I've seen the documentary about her. She tried stem cell therapy, where her immune system was basically destroyed with chemotherapy first, before the transplantation. It looked quite brutal and dangerous. She says she feels better now but the disease is still not really gone for her. It's just...

Most valuable player? From sports?

David Attenborough, the man who was already old when I started to watch his documentaries as a small kid but here we are 30 years later and he still keeps releasing new films every year. Sounds like that autobiography might have been a bit more premature and he should publish another one when he...

Musk, as a bit of a covid skeptic, probably couldn't care less about people with LC.

My personal experience: My disease started with an EBV infection and years later my GP decided to test me again for it. The IgG and EBNA values showed that I had a past infection but the IgM, the one that is indicative of a fresh infection, came back with the label that could be translated as...

Abstract Background Autoimmunity has been reported in patients with severe COVID-19. We investigated whether antinuclear/extractable-nuclear antibodies (ANAs) were present up to a year after infection, and if they were associated with the development of clinically relevant Post-Acute Sequalae...

There is someone in my group who tried it but she said for her it was a big disappointment, although she had high hopes.

The BMJ: Long covid: protesters outside the White House demand better care Protesters took to the pavement outside the White House on 19 September to demand a better deal for people affected by long covid, complaining that the Biden administration’s plans fell short on action and funding...

From what I can see, only one person with CFS was included in this study, so feel free to move this to a different subforum if that's better suited.

Full title: Differences in outcomes after total hip arthroplasty for osteoarthritis between patients with and without central sensitivity syndromes other than fibromyalgia Abstract We investigated the differences in outcomes after total hip arthroplasty (THA) for hip osteoarthritis (HOA)...