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  1. Wyva

    Associations of Depression, Anxiety, Worry, Perceived Stress, and Loneliness Prior to Infection With Risk of Post–COVID-19 Conditions, 2022, Wang et a

    Key Points Question Is psychological distress before SARS-CoV-2 infection associated with risk of COVID-19–related symptoms lasting 4 weeks or longer, known as post–COVID-19 conditions? Findings This cohort study found that among participants who did not report SARS-CoV-2 infection at...
  2. Wyva

    JK Rowling new book — chronic illness references

    So I have no idea what is going on here, because those screenshots with the tweets were pretty confusing to me. But I did spot CF, fibromyalgia and ME here and there in that text. Edit: I just realized more info was added to the above post a bit later, so mine is a bit redundant now. :)
  3. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An abstract published in Ideggyógyászati Szemle Proceedings (Clinical Neuroscience Proceedings) by neurologists at the Hungarian National Institute of Mental Health, Neurology and Neurosurgery. This is the Google translated version: Post-Covid syndrome autonomic nervous system abnormalities...
  4. Wyva

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    This is also how it was explained in my English grammar books (they teach British English here). Now I actually looked this up in a book I have titled Cambridge Grammar of English (from 2011) because it has a chapter about the grammatical differences between the two (and it is 10 pages long)...
  5. Wyva

    Post-COVID-19 Syndrome is Rarely Associated with Damage of the Nervous System: ..., 2022, Fleischer et al

    I had to reread the last sentence 2 or 3 times until my ME brain realized that it is not actually "Patients pretending..." :oops:
  6. Wyva

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    "Risk factors for the chronification of symptoms may include having several symptoms at time of testing and the presence of cognitive symptoms evidenced by a difficulty concentrating. A recent study described the longitudinal evolution of symptoms over 12 months and suggested neurologic symptoms...
  7. Wyva

    The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and (...), 2022, Nehme et al

    Full title: The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and increased healthcare utilization Abstract Post-COVID condition is prevalent in 10–35% of cases in outpatient settings, however a stratification of the duration and...
  8. Wyva

    The Significance of Pain Drawing as a Screening Tool for Cervicogenic Headache and Associated Symptoms in Chronic Fatigue, 2022, Bernhoff et al

    Purpose: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) present with a broad spectrum of symptoms, including headache. A simple, yet powerful tool – the pain drawing identifies essential aspects such as pain distribution. The aim with this study was to 1) evaluate the...
  9. Wyva

    Muscle fatigability and post-acute COVID-19 syndrome: A case study, 2022, Fanous et al

    "Some studies have raised the possibility that COVID-19 may be causing chronic fatigue syndrome (CFS) in post-acute COVID-19 and thus leading to the observed fatigue complications (Deumer et al., 2021; Murga et al., 2021), but in this case, there was no reduction in actual muscle torque nor a...
  10. Wyva

    Muscle fatigability and post-acute COVID-19 syndrome: A case study, 2022, Fanous et al

    Abstract The acute phase of COVID-19 has been well studied, however with increasing post-acute COVID-19 syndrome, much is unknown about its long-term effects. A common symptom in both the acute and post-acute phases has been fatigue, assessed predominantly qualitatively. Here we present a...
  11. Wyva

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    Correction: I just realized I mixed up my cortisol result with my ACTH result. My cortisol level is great, it is actually right in the middle of perfect. So at least in my EBV triggered case, we can rule out any cortisol involvement. It is not even a little bit low.
  12. Wyva

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    If anyone is interested, my cortisol turned out to be pretty low, but still within normal range. The CDC and Hutan were right. :thumbsup:
  13. Wyva

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    Thanks for this @Andy and @Hutan . My cortisol level (and some other endocrine values) will be checked on Monday at Semmelweis University. It was my GP's idea but also the endocrinologist at the University offered me to do these tests, admittedly because that's the only thing he can do about...
  14. Wyva

    News from Austria and Switzerland

    Found an interview in English with Michael Stingl, Austrian neurologist who specializes in ME/CFS. Long-Covid treatment: instead of inaction – use existing medication! As a doctor, what do you need to better treat patients with ME/CFS and Long Covid? The big problem with ME/CFS is that we...
  15. Wyva

    Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?, 2022, Orji et

    Abstract Background ME/CFS is a disorder characterized by recurrent fatigue and intolerance to exertion which manifests as profound post-exertional malaise. Prevalence studies internationally have reported highly variable results due to the 20 + diagnostic criteria. For Australia, the prevalence...
  16. Wyva

    Long Covid in the media and social media 2022

    Here in Hungary you couldn't read literally anything about people being out of work long-term due to long covid until now. The media is really not that much interested in long covid here. But now a few days ago I saw an article about our healthcare system being on the brink of collapse due to a...
  17. Wyva

    News from the USA, United States of America

    I just would like to draw some attention to the National Research Action Plan on Long COVID in @ahimsa's post, in case someone didn't click on the link. These are the parts about ME/CFS: From the chapter Summary of Partner Input: The text also mentions ongoing or planned LC studies in...
  18. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I've bought the article: most of it was about other, much better defined medical conditions and one paragraph was about ME/CFS. (The Wessely quote was about something unrelated.) It only said that basically due to the association with HLA alleles and certain measurable immunological differences...
  19. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I think I've mentioned it a couple of times that it is really rare here that anyone mentions ME/CFS at all in any context (and they don't mean simply chronic fatigue by it). We aren't really actively chased by psychiatrists here so much, we are just simply ignored usually and everyone is...
  20. Wyva

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    Axcella previews long Covid registrational trial plans for AXA1125 "Earlier this morning, Axcella announced results for a 41-patient Phase IIa trial of AXA1125 in long Covid (NCT05152849). The trial did not meet its primary endpoint of phosphocreatine (PCr) recovery rate following moderate...
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