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Facebook is not so good at these things, especially if it's not a cookie-cutter type of example. Ads need to be preapproved for example and it is run by an algorithm/AI, people only check it if you disagree and appeal. I agree it would be better to be able to include a short message when you...

Abstract Primary Sjögren’s syndrome (pSS) is an autoimmune disease with frequent neurological involvement. Memory complaints are common, but their precise patterns remain unclear. We wanted to characterize patterns of neurocognitive profiles in pSS patients with cognitive complaints. Only pSS...

Not much, just a couple of long covid studies that got ethical approval recently in Hungary: Google translate: Title: Detection of eye movement disorders in dizzy patients after Covid-19 infection and analysis of the data with artificial intelligence Applicant: MMS One Zrt. Study leader: Dr...

"The nervous and immune systems are tightly intertwined. Deciphering their chatter might help address many brain disorders and diseases." There is a lot more in the article about the brain, neuroimmunology, microglia, sickness behaviour, Alzheimer's, MS, etc, but this is the part that caught my...

Here professor Janszky (a neurologist) keeps hinting at that. The UK Biobank found changes in areas connected to the olfactory cortex in people who had caught covid and so did he and he thinks that the affected areas in the orbitofrontal cortex might play a role in long covid somehow.

This is a joint scientific statement from the European Society of Cardiology. Some excerpts, where ME/CFS is mentioned: Treatment options:

Full title: Long COVID and the cardiovascular system – elucidating causes and cellular mechanisms in order to develop targeted diagnostic and therapeutic strategies: A joint Scientific Statement of the ESC Working Groups on Cellular Biology of the Heart and Myocardial & Pericardial Diseases...

Opinion piece by Keith Kahn-Harris. For 30 years, I tried to ‘fight’ it. In the end, I found relief in embracing my identity as a person with a disability. In my second year at university, I came down with the Epstein-Barr virus, and I expected to fully recover. Sure, I knew it would take...

I can't answer this either, I just wanted to say that I have this too. However, in my case this doesn't happen when I do something on an "OK" day. I only experience this kind of muscle burn when I overexert myself on an already bad day. This is how I'm sure this can't be the result of...

And I've also heard of fibro fog and chemo fog, so I guess some diseases had their own version even before covid.

This post has been copied to a new thread: ME/CFS co-morbidities I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be more common in...

Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be...

I came across this article in Google News and it showed me a short part of a sentence (relevant to the keyword I used): "Another example relates to the activism of chronic fatigue syndrome (myalgic encephalomyelitis or encephalopathy) campaigners, whose fury at..." So it's probably "worth"...

From the paper: At least one diagnosis of depression, anxiety, chronic fatigue symptom (CFS), fibromyalgia, or post-traumatic stress disorder (PTSD) with new onset within the first 6, 9, or 12 months after the test was reported by 7.2% of test positives, compared to 3.3% of test negatives. The...

Abstract A considerable number of individuals infected with SARS-CoV-2 continue to experience symptoms after the acute phase. Here, we report findings from a nationwide questionnaire study in Denmark including 61,002 RT-PCR confirmed SARS-CoV-2 cases and 91,878 test-negative controls aged...

So now I seem to have some sound sensitivity but I don't know if it is the typical ME/CFS hypersensitivity or not. I never had sound or light sensitivity before, even when I felt much worse at the beginning of my illness. In the past few years I've been getting worse and worse though and this...

Merged thread

David F. Marks also commented on this, demanding the retraction of 87 of his publications: King’s College London’s enquiry into Hans J Eysenck’s ‘Unsafe’ publications must be properly completed, 2019, Marks, Buchanan Abstract This journal recently drew attention to an extensive body of highly...

Just an n=1 story but I remember seeing someone like that in the Hungarian long covid FB group. Someone with POTS kept asking her if she is sure it happens when she is in a horizontal position and not upright and she said yes, it is horizontal. She was the only such person I've seen though...

It is quite a long report from the American National Academies, you can find a summary of key points in this article: Long COVID: National Academies’ Panel Examines Long-Term Health Effects of COVID-19