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  1. Wyva

    Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop, 2022

    Contributor(s): National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Laura Aiuppa Denning and Erin Hammers Forstag, Rapporteurs -- 'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients...
  2. Wyva

    U.S. News: Chronic Fatigue Syndrome: Symptoms and Treatments

    Problematic article, which aims to give a general description of the disease: https://health.usnews.com/conditions/chronic-fatigue-syndrome For example in the section about diagnosis it only mentions Fukuda and in the treatment section it says: Currently there is no cure for chronic fatigue...
  3. Wyva

    Aphaeresis/ Apheresis (for removal of microclots)

    (Off, but in Hungary there is a paleontologist whose name literally translates as Attila Ancient. There was also a drug programme coordinator whose name means Peter Powderbreaker. These are really rare, unique surnames, I've never heard them anywhere else and that makes this even funnier. Oh...
  4. Wyva

    News from Southeastern Europe

    This article was posted on Facebook by the Serbian ME/CFS association. An interview with prof Branislav Milanovic about the disease: Google translate: What is chronic fatigue syndrome and why it cannot be cured by rest
  5. Wyva

    Vagus Nerve Stimulation

    Press release: electroCore, Inc. Announces Study of gammaCore Sapphire™ for the Treatment of Post-COVID Syndrome ROCKAWAY, N.J., July 07, 2022 (GLOBE NEWSWIRE) -- electroCore, Inc. (Nasdaq: ECOR), a commercial-stage bioelectronic medicine company, today announced Mayo Clinic is initiating an...
  6. Wyva

    News from Scandinavia

    Oh, sad to hear that. I remember that after the mononucleosis he was asked if this was similar to depression and he clearly said it wasn't. Then someone posted an article from much later where he said something like he managed to overcome it and it sounded like he was talking about mental...
  7. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I've found a 25-minute long presentation from Dr Guth-Orji (from my previous post) on YouTube on the effects of covid on aviation safety. She talks a lot about the various sequelae of covid and that it should be taken very seriously because almost every one of these can effect a pilot's...
  8. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An abstract from the International Conference on Sports Science, coming from the Hungarian Defense Forces Medical Center, Aeromedical and Military Aptitude Research and Treatment Institute. Data based on 47 divers and parachuters with a median age of 36. Effects of COVID-19 infection on...
  9. Wyva

    Sooner or Later, We’ll All Belong to the Kingdom of the Sick (Interview with Meghan O'Rourke, author of The Invisible Kingdom)

    CC: In The Invisible Kingdom, you write that if every age has its “signature disease,” ours is the type of chronic illness that tends to go unrecognized in tests and is often viewed with skepticism by the medical establishment. This includes post-treatment Lyme disease syndrome, which you were...
  10. Wyva

    Who Hijacked ME?

    The person in my group who turned out to have myasthenia gravis is convinced that she has PEM. I remember reading it in the IOM report that a lot of people with multiple sclerosis reported they had PEM. I don't know if these are really the same though or similar-sounding but different effects...
  11. Wyva

    European Parliament questions

    Parliamentary questions 27 June 2022 O-000026/2022 Question for oral answer O-000026/2022 to the Commission Rule 136 Pascal Arimont, Dolors Montserrat, Radan Kanev, Cindy Franssen, Sirpa Pietikäinen, Frances Fitzgerald on behalf of the PPE Group Subject: Lack of tangible results following...
  12. Wyva

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    The UK’s IAPT Service Is an Abject Failure By Michael Scott It is a longer article but ME/CFS and MUS in general are also mentioned: IAPT appears not to so much follow the data, but to follow funding opportunities. It has branched out into territory were angels fear to tread: Medically...
  13. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An abstract for a presentation at the Congess of the Hungarian Society of Nuclear Medicine, titled Examination and follow-up of COVID-19 disease by brain PET / CT examination. It is about a study that seems to confirm the changes in the brain scans after covid, reported elsewhere, but they also...
  14. Wyva

    Preprint: Post-viral fatigue following SARS-CoV-2 infection during pregnancy: a longitudinal comparative study, 2022, Oliveira, Nacul et al

    This is also very high in Hungary, one of the highest in Europe: 40%. But it wasn't like this originally, it has only changed in the past few decades. It has of course several reasons probably but here a big contributing factor may be the fact there aren't enough doctors anymore and thus...
  15. Wyva

    Preprint: Post-viral fatigue following SARS-CoV-2 infection during pregnancy: a longitudinal comparative study, 2022, Oliveira, Nacul et al

    Abstract Background: Several studies have reported post-COVID-19 fatigue in the general population, but none explored post-COVID-19 fatigue among pregnant women. The objectives of this study were to determine the prevalence over time, duration and risk factors of post-viral fatigue among...
  16. Wyva

    Has there been any research into other coronaviruses and ME?

    Recently, since I've been getting worse, my GP decided to test me for a range of different viruses (for example several different herpesviruses, hepatitis viruses), just to exclude some sort of weird acute infection. (And I was also retested for EBV, which was my trigger.) Well, a lot of the...
  17. Wyva

    News from Doctors with ME

    So Dr Hng replied to me, said it was a mistake and apologized. (And had also deleted the problematic post even before reading my message, after she realized the mistake herself.)
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