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Bookmarking this answer for the next time I try and talk to my GP about why my ferritin is low but other rbc results are OK!

I hadn't heard of Patricia Murray before. https://www.liverpool.ac.uk/people/patricia-murray Interested to see that she began her career as a nurse. Perhaps this helped her to see medical claims in terms of their impact on patients rather than on the researchers' careers.

Saw this in a Mastodon thread today about the World Conference on Research Integrity. https://mastodon.online/@tomstafford/114301415246307147

Researchers missed a trick not including healthy controls. If caffeine also improves the walk distance, perceived fatigue and so on of control participants, then they've found a treatment that can support healthy people being rehabilitated from, um, healthiness.

Did they check whether all the confirmed ME/CFS diagnosed patients passed this test?

OK! Yes, probably safest.

I'll try and do this later.

And followed up the subjects for a year, so we could see how many *actually* recovered enough to resume their old lives, and how many ran on fumes for a few months and then crashed.

It's a shame things sometimes get sensationalised to make an eye-catching title. Plenty of people don't find tracking a gift or a curse, just something that helps a bit (or doesn't).

Long-term effects of SARS-CoV-2 infection on blood vessels and blood pressure – LOCHINVAR Where did they get the H?

I can say the first three or four syllables of 'Deteriorative' but my chances of getting anyone else to understand the whole word would be slim! What's a word meaning the same sort of thing but easier to pronounce?

Thank you for keeping up with all these.

Chalder Fatigue Questionnaire. [sound of someone scrunching up paper and dropping it in the bin]

I've tried to see how this compares with the asymmetrical results found in 'Glymphatic system dysfunction in recovered patients with mild COVID-19: A DTI-ALPS study' https://www.cell.com/iscience/fulltext/S2589-0042(23)02724-4 but it's too many words for me Forum thread here...

Which frontbenchers have indicated that they might resign?

I mean in the ME Association piece.

https://meassociation.org.uk/2025/03/the-me-association-fervently-refutes-the-psychosomatic-model-of-causation-applies-to-me-cfs-or-indeed-long-covid/ "The ME Association fervently refutes the psychosomatic model of causation applies to ME/CFS or indeed Long Covid" Unfortunately, just saying...

yikes

“[The media] presented long Covid as an unequivocal pathological result of a viral infection. [A psychosomatic] cause wasn’t even touched on." This obvious untruth alone ought to get her laughed out of any serious discussion. But instead she does the rounds of podcasts and promotional...