Search results

  1. E

    Do you get breathless with exertion?

    Yes (ME triggered by Covid) - both physical and mental exertion leave me short of breath now. I'm not overweight, mid 40s and no other medical conditions.
  2. E

    Altered Neural Processing of Interoception in Patients With Functional Neurological Disorder: A Task-Based fMRI Study 2024 Sojka et al

    A finding of reduced neural activation during interoceptive tasks would seem to conflict with the hypothesis that FND patients are paying too much attention to interoceptive signals and becoming overly sensitised?
  3. E

    UK House of Lords/ House of Commons - relevant people and questions

    Somebody could usefully ask how many of those services are due to close in the next few months (as my local one is), or have already closed, because of denial of funding.
  4. E

    United Kingdom: ME Association governance issues

    nope, you don't get to sneer about people being oversensitive if they disagree with you and then turn round and preach that "we must all come together".
  5. E

    Could there be an on/off switch for ME/CFS and if there is, what would that tell us??

    Or even on a smaller scale; it seems quite a common experience that trying a new medication causes a small improvement and then the problems come back. OK, placebo effect, regression to the mean, etc etc. But it would also be consistent with a feedback loop being temporarily disrupted and then...
  6. E

    Poll: To what extent are you (PwME) still shielding from Covid?

    The last time I was indoors with people other than family, which was months ago, I planned to wear a mask and had it in my pocket, but forgot to put it on (my brain was at capacity trying to stay conscious and occasionally talk). And of course no one else was wearing one so there was nothing to...
  7. E

    "The evidence for pill colour impacting placebo effects gets flimsier the more you examine it"

    Looking at the evidence for one of the things that tends to get quoted as a proven fact in discussions of placebo effect: "The BMJ tries to walk a middle ground. The review acknowledges that the evidence is inconsistent while still suggesting that colour might influence the effectiveness of a...
  8. E

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I've been listening to this in little chunks. Both interviewees talk about "recovery" but they agree "you never completely recover - you just learn that you have to manage your energy". Before illness LP describes herself as always busy and defining herself by productivity/achievement. So when...
  9. E

    Enhancing exercise intervention for patients with post-acute COVID-19 syndrome using mobile health technology: The COVIDReApp R..., 2024, Duenas et al

    ChatGPT-generated, perhaps.
  10. E

    What research do you want to see? (study ideas)

    Sorry - had a brainfade there.
  11. E

    What research do you want to see? (study ideas)

    NHS England month-by-month data for July 2021 to Feb 24 is here. https://www.england.nhs.uk/statistics/statistical-work-areas/covid-19-post-covid-assessment-service/
  12. E

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Suggestions from the thread linked earlier, https://www.s4me.info/threads/alcohol-intolerance-and-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-maciuch-jason.33560/#post-549305
  13. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    Thanks!
  14. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    One study is discussed here - the study author joins the thread and comments on some of the possible mechanisms https://www.s4me.info/threads/alcohol-intolerance-and-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-maciuch-jason.33560/
  15. E

    Guardian: "Britain has closed its eyes to long Covid"

    Interesting that there are over 300 comments on this and almost none claiming LC is fake or 'just mental health'. A couple of comments have been removed by mods, but a year or two ago half the thread would have been denialism and minimisation. I do think public perception is changing. (edit to...
  16. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    Is he still on Twitter? Maybe someone could send him some tempting links to threads for paper discussions...
  17. E

    Insights from triggers and prodromal symptoms on how migraine attacks start: The threshold hypothesis, 2024, Sebastianelli et al

    I've never been able to identify any triggers for mine (they aren't frequent). Wish I knew!
  18. E

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    The more you look at this paper the weirder it gets.
  19. E

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe it's the kind of plastic they use to make scuba masks.
  20. E

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I got the Loop Link for mine, so they're hanging around my neck when not in my ears, and it massively reduces the faff of constantly dropping/picking up/cleaning/losing them.
Back
Top Bottom