Search results

This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you sure you couldn't just try...?"

Unserious Science The first section of this article by Adam Mastroianni made me think of quite a few studies that show up in the psychosomatic subforums... https://www.experimental-history.com/p/surely-you-can-be-serious

Also https://www.ipsea.org.uk/ is a great source of advice on statutory rights for young people with medical issues.

Ah, makes sense. Sad.

who wants to tell them?

Thinking about this a bit more: the consequences of doing an activity are the direct result of how ill you are. Your decisions on how to adapt that activity or avoid it (if you can) are based on the consequences you've experienced and/or can predict from doing it, but also affected by other...

What I find deeply confusing about the MEAQ is that it has so many overlaps. 'Adaptations' are factored into some of the activities listed, but are also included in one of the answer options. eg 'Sit up in bed for approx. 30 minutes (NB. less than 30 minutes = an adaptation)' and there's an...

"Lucy’s GP diagnosed her with long Covid and referred her to a specialist clinic. The help she got was limited. “Every medic I saw did their best, but it was all so new; nobody knew anything. I got introduced to graded exercise therapy, to try to improve my fitness, but that just set off a...

and if you're a parent researching the condition because your child is suffering with it, face having that used against you in an accusation of FII that could tear your family apart.

Seems extraordinary that a research group at one of the flagship research universities in the country is having to beg for £10 donations on the internet (from a patient population which almost by definition has little spare cash). edited to add: I don't mean this as a reflection on the...

That makes no sense. You can't tell how well a questionnaire is picking up changes unless you have another way of measuring the changes. It's like sticking a thermometer into water at different times and saying 'this will tell us the temperature of the water, and also whether our thermometer is...

That reminded me of this: https://www.newscientist.com/article/dn17064-quack-remedies-spread-by-virtue-of-being-useless/

Week 1: 'Understanding Long Covid' and 'Symptom Recognition'. As long as those symptoms don't include 'being too ill to play tennis'.

Text generators in a nutshell. Great if you want a squishily averaged synthesis of general opinion. Not great if you want factual accuracy - though it can look like it if you're asking about a topic where fact and general opinion happen to more or less overlap.

I feel sad for the kids who underwent that testing presumably in the hope that they were contributing to some meaningful research.

In the Discussion they say "The main limitation is the small sample size. Beyond the participants’ willingness, difficult transportation to the hospital and a pessimistic view of the benefits of rehabilitation played a significant role in participants’ decision to take part or not. It has long...

When the lack of statistically significant differences between the exercise group and control group is so glaring that all you can put under Conclusions is 'Similar studies have reported...'

Not convinced that lumping 'mental health conditions' and 'brain fog' together tells us much about either category of problem.

It's quite telling that she said that as if it meant LC is all in the mind, whereas if you have fatigue/pain + dyautonomia + brainfog then of course it's easier to walk around in a familiar space with short distances between easily accessible resting spots than it is to walk outside where there...