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I'd love to do a Rosenhan-style experiment sending 100 healthy people to these neurologists with a letter saying their GP suspects they have FND, and see 1) how many of them show "positive signs", 2) how many of them don't show "positive signs" but come away with an FND diagnosis anyway.

Some useful figures in this. https://coppolacomment.substack.com/p/the-people-most-affected-by-the-governments

On the other hand, seeking out sensory stimulation is also a common thing in autism - repetitive movements, rocking, fiddling, making certain noises, etc - sometimes to the extent that it becomes injurious e.g. if people pick at their skin so much that it bleeds, or pull hair out, or headbang...

Royal Society of Medicine livestreamed event on 11 July. 'Organised by Rheumatology and Rehabilitation' https://www.rsm.ac.uk/events/rheumatology-and-rehabilitation/2024-25/rrt52/

Maybe not any more. From the minutes of the APPG on ME and Long Covid last month: https://appgme.co.uk/meetings/minutes-for-appg-meeting-14-may/

This is where the faked-up data about sickness benefits enabling long-term sickness comes in, so that cuts can then be presented as "compassion", as "saving" people from being "cast on the scrapheap" and "trapped" in a life of dependency.

FWIW I've just asked a relative of mine who is a professional circus acrobat, her core muscles are steel. Answer: "we'd never do that many situps, they're not really optimal for abs".

Also with a mean age of 45.

Considering that it follows on from a pandemic, it's positively modest.

Table 2 shows 29.7% of the control group experiencing "PEM". :emoji_shrug:

Tiny numbers, and the non-covid controls were also "randomly selected" patients at the teaching hospital but I can't see if the paper includes details on what their health conditions were.

https://www.theguardian.com/society/2025/jun/24/keir-starmer-disability-benefit-reforms-rebellion-by-mps As usual, the journalist does not provide the basic factual context that PIP is not an out-of-work benefit.

Interesting choice of journal.

Just in case this is useful to anyone! https://www.biologists.com/grants/travelling-fellowships/

As with autism being found to have genetic links both with intellectual disability and with higher ability. it probably says more about who gets diagnosed.

Line that jumped out at me on skimming the minutes: Danny Altmann "highlighted that there has been no Long Covid research funding of any significance from the NIHR since 2021."

I use a duvet cover with no duvet in it!

Reduced perception of fatigue is a real double-edged sword if it causes you to go beyond your limits. Even if it's just by a little bit each day, because you feel you're a bit brighter for whatever reason, culminating in a crash. I'd guess a lot of us have been down that dead end at times.

It would be nice to think that many of the 266 who chose not to attend did so because they know it would be bullshit.