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The insinuation is that both pwME and trans people are mentally deranged, and that those who recover/detransition and return to healthy normality then face being "silenced" by activists who supposedly want to prevent other sufferers from realising that recovery is possible.

This marketing line has been used a couple of times now by govt spokespeople, it's obviously the party line. I'm trying to compose an email to the Long Covid APPG group pointing out the correction in the BMJ about the results only being applicable to hospitalised patients. Hoping maybe some MP...

It's ridiculous. This paragraph in particular: How anyone can think these three sentences make sense together in any context, let alone in relation to the findings of this 'study'...

I don't think it even tells us that. I think it just tells us that using questionnaire scores as a primary outcome measure is a waste of everyone's time. Their only vaguely objective measure is the EEG, and that only showed significant changes in the sham group. LOL.

yet someone felt the need to publish this at this stage?

Respect! I once made nettle soup for two and that was trouble enough.

I know somebody who swears she was cured of Long Covid overnight by drinking nettle tea, so maybe that's the charm after all! (Except I also drank the nettle tea which she was kind enough to give me, and it did not cure me :rofl: )

It's a fluctuating and unpredictable illness from which a percentage of people recover with no intervention at all. Anecdotes of recovery attributed to any one particular method deserve to be afforded just as much belief as anecdotes of recovery by any other method (graded exercise, experimental...

It's the same kind of style you see from any Youtube crank ranting about how the earth is flat or vaccines cause autism or whatever. But because he has some past professional eminence he gets treated as a non-crank.

That reminds me (though I can't remember the specifics) of some politician or other who wanted league tables for hospitals, including rating surgeons on how many of their patients survived their operations. Until someone pointed out that the best surgeons often have rather high death rates...

They've got figures showing that a lot of people who claim sickness benefits for six months or less return to work, but people who claim for longer than a year are less likely to ever work again, and yes, they're spinning this as meaning that long-term support makes you sick. The analogy would...

I'd love to get this guy into a conversation with the FND guys who insist that you mustn't test patients for anything at all because that will make them ill by suggesting their symptoms might be real.

I have constant internal tremors but my cortisol was normal when tested. all I can say for sure is they're worse when I've over-exerted and when I'm hungry.

I actually have thoughts on this whole subject which I would love to put into a few coherent paragraphs, but my brain is not co-operating :rofl: so I'll just say "yeah."

It's like reading a treatise by a couple of medieval theoreticians earnestly explaining the theory of the humours and how digestive disorder is caused by excess phlegm driven out from your brain to your stomach by the autumn winds. Those guys probably had a good old sneer at their patients'...

Goes on to promote exercise rehabilitation, inevitably.

It's hard to take a horse to water when people keep putting the cart in front of it.

Interesting that some of their subjects had objective cognitive deficits in some domains but didn't subjectively report experiencing it. So a better title might be Post-COVID-Syndrome Patients Might Overestimate or Underestimate Own Cognitive Impairment. Or perhaps Post-COVID-Syndrome Patients...

Their 'Good Day/Bad Day Questionnaire' is quite interesting. Don't think I've seen a discussion of it here? (Keywords are too short to search the forums.) It's obviously a blunt instrument, but giving answers for both ends of a spectrum of functioning might be more helpful than the majority of...