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"After an hour-long stand-off (pictured), the activists eventually persuaded Department for Work and Pensions (DWP) civil servants to allow one of them, Rick Burgess, to address the disabled people taking part in the consultation. He asked those present to vote on whether they wanted to give...

Thanks. I've emailed mine.

Good point. The whole thing is probably pretty tenuous anyway given the infant nature of the art of trying to interpret psychological states from fMRI, and perhaps especially so in the context of other people's findings on cerebral blood flow.

So they expected to find PCS patients were less reward-motivated (because of our "anhedonia" causing us to imagine that we're fatigued, innit) but they actually found the opposite?

It's likely that not everyone who currently has an 'ME/CFS' diagnosis will actually have whatever problem the new biological explanation points to. Some will be left as a 'mysterious chronic fatigue' afterthought and they'll be great prey for the psychologisers - not only are all their tests...

So only two out of the 44 participants had a diagnosis of FND, but they all had FCD which is a subtype of FND? (according to the authors)

How interesting!

Thread on the preprint here. https://www.s4me.info/threads/long-covid-brain-fog-treatment-findings-from-a-pilot-randomized-controlled-trial-of-constraint-induced-cognitive-therapy-2024-uswatte-et-al.39224/ My comment there was: (edit to add: sorry for the unnecessary duplicate post, should...

:banghead:

At least they've stopped using that line about how 'at worst', ME/CFS can make people 'feel' they aren't getting proper care. Perhaps someone's explained how insulting it was.

I'd bet money that the phrase "As a large language model" appears somewhere in there.

That was my reaction too, as an autistic person and the parent of an autistic child.

(Incidentally I first read the study title as "Inventing Associations Between Central Sensitivity Syndromes and the Autism Spectrum", which sounds about right.)

Something that is frequently talked about by autistic people is 'sensory seeking', ie being undersensitive to stimuli (compared to other people), hence some physical repetitive behaviours or 'stimming' (repetitive movements or fiddling) to provide a consistency of sensory feedback. I've no idea...

Couple of things from a quick skim of the PDF: That suggests their participants were on the milder end of LC, because those with more severe symptoms would have been more likely to already be on a GP or specialist care pathway and so ineligible for the study?

In the rubber hand illusion, as in other illusions, the illusory sensation is almost immediately extinguished as the brain corrects its momentary error. The initial conditioning doesn't cause the participant to go on believing that the rubber hand is their own. You could just as well argue that...

Higher doses have some nasty side effects, which would be problematic both in terms of wanting to avoid harming trial participants and also possibly creating confusion in the data.

GPs and other HCPs often seem to have enough trouble understanding the facts of what life is like for pwLC and ME, without becoming confused with yet another 'it's a bit like this except not really' condition.

A member suggested that people think the person in pain is performing or amplifying the discomfort by fixating on it and conversely, if you can grit your teeth and hide the fact you're in pain, that obviously means the pain isn't that bad. There's no "correct" way to give an external idea of...