I saw a recommendation on here for Charlie Anderson on YouTube, I found her very helpful as well as using the Benefits and Work guides.
It’s just such a lot of work.
Ok well it is relevant because they are quite forthright about this app, and not about the Elaros one. Also they talk about what they fund, making zero reference to the PROMs they funded.
It’s also badly written and badly set out making it hard to follow.
It’s like chatGPT, except that makes more sense.
Maybe it was written “by committee” it’s just very unclear. Worst group project ever!
Although compare it with the responses about Elaros, the app they are somewhat involved in. Or aren't, I can’t really tell.
Weird wasn’t it? I was too tired to write properly. But also this rebuke needs comparing to what is being produced with Elaros IMO (I’d offer but I’m too tired. Perhaps if insomnia descends later)
Discussion moved from the Elaros thread
Interesting about the ASA and MEA and an app
https://meassociation.org.uk/2025/07/mea-defends-how-we-raise-money-for-research-how-we-spend-it-and-our-position-on-referring-unproven-claims-about-recovery-programmes-to-the-regulatory-authorities/
Given that bullying and discrimination are ACE’s, it seems curious that Black and Asian groups were less likely to have the long Covid, yet would be more “at risk” of ACEs.
Or to put it another way, this study is a load of old tosh.
Specifically which ACE’s? They’re not all equal. You can’t say...
Funny, I’d have bet his middle name starting with A as being a reason for adding “woof” to his twitter handle, so many men on Twitter feminise their first name by adding their middle initial “a” I guess he didn’t want to be PaulAGarner
Maybe it’s a family name, it’s from the etymological root of wulf. Or maybe he thinks he’s a wolf. Or a dog. Who knew this would be the most fascinating thing about his X’s/tweets whatever they are.
It’s the day after the 12th as well (this isn’t relevant unless you’re in parts of the UK where there are sectarian tensions, which Paul is)
It’s actually rather offensive to the general public to advertise “I recovered from Long Covid” whoop de do, you not only didn’t die from Covid but you...
I don’t think that’s it unfortunately.
There was probably other Paul Garners because it’s a common name and he just needed to put something in.
Anyway I saw a nice badge, available from all good Chinese internet sellers
Visible Free Version for example, along with Apple health for heart, steps, or a free app like bearable for symptoms etc and wearable = pre-set reports.
This stuff is already out there and in use. As is the hodgepodge lodge of leaflets they’ve gleaned from the top Google results for “fatigue...
Dear Redditor,
It sounds unbelievable only to people who have not experienced these “medics” themselves. We here are all too familiar with this attitude. Join us, you’re very welcome.
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