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  1. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I saw a recommendation on here for Charlie Anderson on YouTube, I found her very helpful as well as using the Benefits and Work guides. It’s just such a lot of work.
  2. MrMagoo

    United Kingdom: ME Association news

    Yeah it’s so easy to get lost in!
  3. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It’s ok, he’s only got 3 likes.
  4. MrMagoo

    United Kingdom: ME Association news

    Ok well it is relevant because they are quite forthright about this app, and not about the Elaros one. Also they talk about what they fund, making zero reference to the PROMs they funded. It’s also badly written and badly set out making it hard to follow.
  5. MrMagoo

    United Kingdom: ME Association news

    It’s like chatGPT, except that makes more sense. Maybe it was written “by committee” it’s just very unclear. Worst group project ever! Although compare it with the responses about Elaros, the app they are somewhat involved in. Or aren't, I can’t really tell.
  6. MrMagoo

    United Kingdom: ME Association news

    Weird wasn’t it? I was too tired to write properly. But also this rebuke needs comparing to what is being produced with Elaros IMO (I’d offer but I’m too tired. Perhaps if insomnia descends later)
  7. MrMagoo

    United Kingdom: ME Association news

    Discussion moved from the Elaros thread Interesting about the ASA and MEA and an app https://meassociation.org.uk/2025/07/mea-defends-how-we-raise-money-for-research-how-we-spend-it-and-our-position-on-referring-unproven-claims-about-recovery-programmes-to-the-regulatory-authorities/
  8. MrMagoo

    Association between Adverse Childhood Events ACEs and long-term COVID-19 symptoms…, 2025, Elkefi et al.

    Given that bullying and discrimination are ACE’s, it seems curious that Black and Asian groups were less likely to have the long Covid, yet would be more “at risk” of ACEs. Or to put it another way, this study is a load of old tosh. Specifically which ACE’s? They’re not all equal. You can’t say...
  9. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Funny, I’d have bet his middle name starting with A as being a reason for adding “woof” to his twitter handle, so many men on Twitter feminise their first name by adding their middle initial “a” I guess he didn’t want to be PaulAGarner
  10. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe it’s a family name, it’s from the etymological root of wulf. Or maybe he thinks he’s a wolf. Or a dog. Who knew this would be the most fascinating thing about his X’s/tweets whatever they are.
  11. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Well the F of woof could be many things. Well off old fogey, for example.
  12. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It’s the day after the 12th as well (this isn’t relevant unless you’re in parts of the UK where there are sectarian tensions, which Paul is) It’s actually rather offensive to the general public to advertise “I recovered from Long Covid” whoop de do, you not only didn’t die from Covid but you...
  13. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I don’t think that’s it unfortunately. There was probably other Paul Garners because it’s a common name and he just needed to put something in. Anyway I saw a nice badge, available from all good Chinese internet sellers
  14. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Visible Free Version for example, along with Apple health for heart, steps, or a free app like bearable for symptoms etc and wearable = pre-set reports. This stuff is already out there and in use. As is the hodgepodge lodge of leaflets they’ve gleaned from the top Google results for “fatigue...
  15. MrMagoo

    UK Government ME/CFS Delivery Plan consultation

    No. Standing up for ME feels like being eternally filibustered. I vote we involve the UN
  16. MrMagoo

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Dear Redditor, It sounds unbelievable only to people who have not experienced these “medics” themselves. We here are all too familiar with this attitude. Join us, you’re very welcome.
  17. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Why don’t they levy a tax on every company that “can’t” aka won’t make reasonable adjustments? That would be a licence to print £££
  18. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Wow I didn’t know Wes was medically qualified
  19. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I live in Liverpool and I’m not buying him so much as a glass of tap water. He can afford to pay for a blue tick on X.
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