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So you can read what they created on the Proms thread, it’s a lot of questions. Over 90, some of the 5 questionnaires. The Healthcare person asks the patient to fill it out, this helps the Healthcare worker understand the issues and where they can help (!) because they will probably be an...

If he’s Greek it’s allowed.

PROMS are outcomes, I think that’s what is confusing. How can outcomes be a toolkit? It’s putting the cart before the horse, is the English expression. They wanted to measure outcomes so they designed a load of questionnaires to be used as a “toolkit” for healthcare providers, which, when used...

So in order to generate patient-reported Outcome Measures, you need a service, a clinic or what have you, to treat the ill people. Then you ask those people after treatment, about the outcomes. To make sure your outcomes are uniform, you develop a toolkit, a standards of treatments, whatever...

From their Feb 2025 event https://c19-yrs.com/elaros-hosts-webinar-on-digitally-supporting-me-cfs-and-long-covid-services/

I can’t do the quote thing. Tyson and Gladwell’s PROMS is now being called the MEA’s clinical toolkit which will be accessible through Elaros’ new OH app as per link/screenshot the OH app beta-testing has its own thread link on last page

The conversation is happening across two threads as well, it’s getting confusing because it’s relevant to the ME Association, PROMS, etc

I suspect that there are worse snake oil sellers on Insta and TikTok making much more outlandish and unfounded claims. I notice a reference to helping “some” people on his little slide, that “some” is doing heavy lifting.

They are starting to become the tent, that’s the concern

We suspect it’s nefarious. I think the facts are more like the DWP put some funding towards an NHS digital initiative which has come up with the app which is also relying on Tyson & Gladwell’s PROMs and the NHS will be maybe using the app when it launches. The concern is what the NHS might do...

My meme game is poor

No matter, all you need is a meme to go viral. He doesn’t need to see it/have it on his account. It just gives the non-Paul believers a chuckle and let’s people know he’s not all that.

It’s a real bunch of tangled somethings.

How about a meme. It works if you are familiar with the Beckham documentary where Victoria tries to say she was ordinary working class, but then admits her dad drove her to private school in a Mercedes or something.

It’s the axis of MEA, PROMS and Elaros OH Beta- test app. They are all tied together

Oh wow this is big news. Thisnisnt much of a comment, just trying to attract attention to the above. So the app and PROMs are all tied together, and with the MEA “we’re not recommending it” ok but you do seem to be funding it…

Ignoring him is the best policy. The second best would be poking fun at what he claims, ideally with a meme generator. Does he have a MEPedia entry? A regularly updated list of his, erm, “expert opinions” would be good. Typically these things do become more outrageous and unbelievable.

We have to hope that, because it’s so badly made and outlandish, that people go ???? eh ???? When they see it

These so-called treatments are not “banned” though. They were evaluated, found to be without merit, and are not recommended. I suppose LinkedIn doesn’t allow “community notes” like X It would be good if NICE could slap him down somehow for misusing their name. Or the School of Tropical...

More red flags than a Turkish/Chinese army parade in Switzerland!