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Oh I don’t pay any attention to that score thing.

Visible is based on the workwell foundation HRM advice. The heart rate zones they use can be customised if you don’t like the ones they suggest to you.

Well slow digestive transit would be a possible “link” to ME as many people have issues with that as they become more severe.

Apparently slow digestive transit can lead to gallstones. They can be linked to cholesterol too, which can be genetic as well (healthy people can have high cholesterol despite good diet). It’s possible to get them if you’re slim, it’s just a higher risk/more likely if you’re overweight etc.

I’m still reeling from the revelation that he’s not even n=1

It’s tne turn of phrasing, she means it would be ok if they talked about it saying it’s problematic or asked about feedback, but they haven’t.

It’s like that “amaZen” booth all over again! We’ve helped you, if you’re still not well then it’s a “you” problem (ignores the oppressive environment the worker is in, because a “solution” has been provided, shifting the problem away and putting it on the individual)

They are very common in women over 40

Can we invent a Patient Harms Index? Where we score things on how much damage they cause us?

So the Yorkshire Rehab Scale which this app uses, is a PROM. why does everyone want outcomes from us, but nobody is prepared to put input to us?

It would be great if some non-disabled allies could investigate

It’s ok they just keep **commenting** that they’re not promoting this, they’re just publicising the opportunity The MEA seems determined to repeatedly kick itself in the head lately.

Comment re: Proms

From Open-OH website For self-management -use validated tools to assess and monitor your symptoms over time - access educational resources tailored for your condition -learn strategies to self manage your symptoms -share reports with carers and relatives - access support for managing or...

And a bonfire in the comments. Here are a selection of people mainly saying “I don’t want the DWP to have this info/Visible exists, why bother making another app” also a long comment which is very informative about the LC platform already being run and that it’s not taking PEM into account...

There’s a lot going on here. Screenshots of the app project

I think the word “stress” is too loaded with connotations. Could you explain your position using terms like “sensory overload” regarding noise, light, conversations etc and also the “mental load” of monitoring yourself, identifying triggers or overload, dealing with them, recovering from them...

Not a scientific answer. I gave up all caffeine for a few years as recommended by P D White. All caffiene, so no chocolate, cola, the lot. I didn’t notice any positive difference (and I was miserable) so I took it up again. I find it hard to get going in the morning, I take 100mg caffeine with...

Obviously we made him ill; when he got rid of all the ME people he got better!

Shouldn’t have done it in full view of people with eyes, in public places then. Whilst being on national telly complaining about being so unwell.