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I suppose if you were very clever, Emeritus Professor level, you wouldn’t need to do the whole LP, you could just assimilate the information and apply it to yourself with your brilliant, insightful brain.

Well, quite.

Imagine being so ill after Covid, that you clock up 85 media appearances talking about it, say you meet the CCC for ME, yet you manage a holiday in the Caribbean where you contract Dengue fever, and declare yourself cured. All in 9 months.

I know a lot of people who know him and witnessed him exercising (in public) regularly during the Summer and prior to “recovery” if Monbiot wants me to hook him up for an expose. It caused consternation.

He’d been reading Garner’s recovery and it made sense, but he didn’t want to risk losing his stability. Then he fell victim to an “unexplained” crash so he decided to give it a go. None of that actually sounds like an unbiased account, please try harder to pretend you’re not a bot.

Oh wow what a great guy, totally reasonable and not at all carefully crafted.

Low public interest, unfortunately. There is a story there, but who would be bothered to.

It’s like the philosophy experiment - if a tree falls in the forest but there’s nobody there, does it make a sound?

Can’t believe he tagged @nice I feel embarrassed for him

I’m a bit over giving GPs sympathy to be honest. The 10 min thing is rubbish, but frankly there are people in call centres dealing with angry or upset people, day in day out, who manage not to be nearly so rude and condescending as GPs have been with me. A call centre worker has never called...

Yes I have met this attitude. I don’t have a consultant treating me, just speak to the GP therefore it’s not serious as there is no hospital involvement.

If only there was a campaign to help doctors be less dismissive

I was invited to join the ME Association “ME Connected” today via insta stories. I clicked the link (for research purposes of course) it took me to the Discord site but then it couldn’t complete the task as the address was invalid. So that’s working well.

Yes the plan was to gather information which could be used as a large dataset on ME - something NICE 206 identified as a gap. Sounds good, right? Sounds like the sort of thing the ME association should fund. Except - the way this dataset would be generated was by the project group of Sarah...

Excited!

A good day to bury news… Hopefully they will be obsolete by the time they’re finished. I can dream!

All quiet on the PROMs front?

Funnily enough, as I have been doing exercises and silent rest over the past 8 months or so, I realised at one point that I was having more and better conversations (strength of voice-wise) however with this came the old problems I’d forgotten about - slurred words, word-finding difficulties etc...

Gutted, I suffer a lot with voice issues and I’d have loved a decent piece of research. I really think it’s an overlooked symptom. When I was mild I-started to lose my voice if I got a bug. Except I didn’t get a bug, it was a little crash. It progressed until I lost my voice for over a month...

Desperate for relevance