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  1. MrMagoo

    Identifying and renaming inaccurate, inappropriate or minimising words, phrases, etc. in ME/CFS

    I do think it’ might belong to Schrödinger, as you don’t know for sure what is in this envelope until you open it. The energy only exists as an unknown until you access it :)
  2. MrMagoo

    Identifying and renaming inaccurate, inappropriate or minimising words, phrases, etc. in ME/CFS

    Are we all behind changing boom-bust to something else? I think it’s been slowly changing to push-crash. I think it’s been discussed a lot. Boom and bust is business language and it’s implying good times and fast living followed by destitution. It also has an air of hubris.
  3. MrMagoo

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Not sure, not many details apart from her name was Sharon and it was also on Facebook. Another “TPN is too dangerous” situation.
  4. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I know none of the pip stuff makes sense, but in theory I can lose my 2s on ADL’s but still have my mobility? So you can only walk 1-20m but you’re fine walking about your home having a shower and putting clothes on to do your cooking?
  5. MrMagoo

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Do these Drs realise that they’re exposing their own somewhat basic personal take on something they don’t even understand? Clearly not. This type of behaviour says a lot about them, more than it says about patients.
  6. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I think they mine it in London and it costs a lot to post it:rofl:
  7. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yeah that’s the usual fix in these situations. I’m already reeling from the cost difference up north. In London my water was discounted and my council tax discount was 100%. Up here I have no water discount, electric is more expensive per unit (I have no idea why, it’s very windy, they need a...
  8. MrMagoo

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Urgh I just read the thread, there were a lot of people saying “ well yes because you only have that if your gut is beyond saving…” it’s amazing how many people seem to think the very real proven outcome of “death” is fine when balanced against using a last-chance measure like TPN. You’d think...
  9. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yeah…it’s nothing to do with immigration it’s just a system with a “squeezed middle” as most systems develop over time.
  10. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    So why do people who are immigrants get it? They’re just the same as people who didn’t have enough credits/years paid in? I’m really confused. I worked offshore for some years and made sure I had enough years paid in. If I settled here from abroad as an adult immigrant then I wouldn’t have...
  11. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    So people who don’t have enough NI years get pension credit?
  12. MrMagoo

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Neurologist practicing in the NHS! Eek. https://www.uclh.nhs.uk/our-services/find-consultant/dr-suzanne-osullivan
  13. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I don’t understand why a recent immigrant gets a pension credit top up equivalent to PIP with associated passported benefits?
  14. MrMagoo

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    I feel like there’s a meme for this? You keep using that word. I do not think it means what you think it means! A film quote which shows a deeper understanding and insight than the good Dr. The Princess Bride
  15. MrMagoo

    UK Action for ME - policies, actions and publications - discussion thread

    Not a fan of the logo or colours, however having experience in charities I can imagine it ticks a lot of boxes. I am personally creating a fantasy in my mind, entirely made up, that they want to get their house in order pending a big reveal by Decode ME later this year….I can dream
  16. MrMagoo

    We need a diagnostic test for fatigue induced by sustained activity

    I love this idea. I think it’s workable. You could find people with similar levels of ME, similar home circumstances, age sex etc so that the group are homogeneous . It’s at home so big tick there. And deteriorating to the point of having to drop out tells us something, too, if you actually...
  17. MrMagoo

    Patients’ experiences of living with Long Covid and their beliefs about the role of psychology in their condition 2025 Petker and Ogden

    Cant we just do a literature review, but one which w cherry pick and doesn’t even back up our assertion about the BPS deep need to be correct in the face of evidence that they’re not? Or shall we just view it through the lens of DARVO and abuse and coercion?
  18. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I’m aware that these are the rules, but as I said I had free expert advice (after a long tribunal process I still got 2s, despite extensive evidence and reference to their rules, that I don’t need any assistance to do anything at any point in the day). I’m now going to waste everyone’s time by...
  19. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I got a bit of free expert advice and they said my ADLs at 2s were about all you’d expect for someone who doesn’t have any carers or OT type assistance, and with no serious (documented by consultant report etc) mental health issues. I think I will push for a Care Assessment (the LA told me I...
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