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  1. MrMagoo

    UK Action for ME - policies, actions and publications - discussion thread

    I don’t think it’s that expensive. If they update every 10 years then it’s £4,300k per year.
  2. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I feel like the BPS doublespeak type of nonsense has spread to other parts of life.
  3. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Feeling a bit freaked out to be honest. I’d be looking at losing 40% of my current income. Honestly I feel like I want a PIP assessment where I will spend the days beforehand absolutely overdoing it, so they can see what happens if I don’t rest. They don’t understand it in writing so I’ll have...
  4. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Nah not always, you just say it, and it’s true. The young people call it “manifesting”. It’s kind of like making stuff up to suit you. Even the study fabricators believe they're right - and they didn’t even carry out a proper study!
  5. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It’s ok, if you’re a Dr or Professor you just say what it is that you believe, that’s good enough.
  6. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    Strange how they can’t offer the CBT to reverse it, though. It’s actually ideal for some CBT.
  7. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Paul believes he had Long Covid and (coz someone said he met Canadian Consensus Criteria) ME and he cured it by thinking differently, so I don’t put much stock in what he believes will or won’t happen. He is also closer to “three score years and ten” so he’s on a more limited timeframe than say...
  8. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    Personally Bob, I’d like someone to undo the GET&CBT type CBT that I got. Surely filling someone’s head with CBT nonsense is exactly the sort of thing some CBT can fix?
  9. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    Again though, it highlights the problem that CBT can mean all sorts of different things. If there is quantitive data that a particular CBT has good out comes for SLE then it’s pointless comparing it with qualitative data for ME. So it literally may not be possible to compare such disparate items.
  10. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    But there is a very specific recommendation for CBT in the Nice 206 guideline which states it’s not curative and not to state that their beliefs are abnormal (I’m paraphrasing). So there is a form of CBT which could be useful. There are, as we know, forms which are harmful. So to go back to...
  11. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Don’t worry, he’s consistently repeating his rather dull story.
  12. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He has mentioned in his earlier blogs that she’s had ME for a number of years. He wrote about being sent a picture of a gun by a disgruntled person. I’ve had worse threatening emails doing internet dating tbh. Again, omitting the frequent exercising he was seen doing in Liverpool, when the...
  13. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    My point is that whatever the style of therapy, or name, doesn’t matter. it’s how it’s used. If I were to paint a car with gloss, it would give a terrible finish. It’s not the paint’s fault, it’s mine for trying to use it where it won’t apply, and not using the right type of paint. “Gloss...
  14. MrMagoo

    Is it useful to compare CBT in SLE and ME/CFS?

    I don’t know but I suspect that CBT can assist in many difficult circumstances. From being diagnosed with a chronic disease, to being put in prison, made bankrupt, homeless etc. I think the label is a problem. Replace “CBT” with “psychotherapy” or “counselling” or talking therapy”, it’s just a...
  15. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I saw a good post on social media today. I think a pwME. Along the lines of- Government wants me to work. Log in to DWP Gov Job site. Used the filters to find disability confident employers>work fully remote/from home>part time. There are 7 jobs advertised. How are we all going to get jobs if...
  16. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    GP’s are overworked and underpaid, too. Fit Notes were supposed to come in with some sort of government-run Occupational Health type service who would assess people on behalf of the workplace and suggest adjustments…never happened. Just left to GPs.
  17. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Not the way they’re thinking of it, I can bet you it involves an app and exercise…
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