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  1. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    This is worse than just us. Obviously as per usual, it’s worst for us and those of us who are severe/very severe. This has been in the background whilst they were trying to cut PIP and merge it with LCWRA. We need to go to Benefits and Work, Crips against Cuts etc
  2. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Is thee a name for the “whataboutery” involved in the constant, constant rehash and re-writing of inappropriate and harmful rehab approach? It’s draining. Always having to read through projects, papers, app proposals, testing, questionnaires etc which after you distill all the information down...
  3. MrMagoo

    Lightning Process: Evidence that participants are taught or expected to misrepresent or lie about their symptoms

    Reading about LP just takes me back to that CBT. No more treatment if you don’t agree things are better. If things aren’t getting better, you’re not doing it right. If you do it right you will feel the benefits.
  4. MrMagoo

    Lightning Process: Evidence that participants are taught or expected to misrepresent or lie about their symptoms

    You know what, it’s not actually that much more extreme than the old CBT based on GET.
  5. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes it does seem to be about being so much more cleverer and smarter than the average bore.
  6. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    God he’s interminable with his tweeting. How is this new? Does he need me to get some crayons, and a copy of Genetics for Dummies?
  7. MrMagoo

    Lightning Process: Evidence that participants are taught or expected to misrepresent or lie about their symptoms

    What is a cult? An AI overview Includes -devotion to a person or ideal -manipulation -isolation from friends and family etc -harmful practices
  8. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Good. Let’s hope he stays “stealth” media wise
  9. MrMagoo

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    I don’t think they will scrap it though. It’s already been funded/sponsored/sold It’s probably producing “data” out the back for clinicians/ICB’s/PROMS If anything, the bits bolted on the front end to “help” patients is a bonus afterthought, it’s not the purpose of the app.
  10. MrMagoo

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    Brilliant, philosophers are up to this as well as psychologists?
  11. MrMagoo

    UK ME Association 2025: Prognosis, Permanency and Quality of Life in ME/CFS

    I still would like treatment to undo the CBT the NHS gave me, which it no longer recommends.
  12. MrMagoo

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    The self-as-case-study plus pontificating tells us so much, and what it tells us is not what the words say!
  13. MrMagoo

    DecodeME in the media

    Oh. So illness is a moral failing after all. Le sigh.
  14. MrMagoo

    DecodeME in the media

    I wonder whether anyone has studied the overlap of trauma, ACE’s, abuse etc and cancer?
  15. MrMagoo

    Virtues that Mitigate the Deprivations of Chronic Fatigue Syndrome, 2025, Hartman

    I wouldn’t read this, it has all the hallmarks of a self-important older academic dressing up his personal experience as somehow worthy of a published study. A category which already suffers from too much attention. To quote the lightening process, “stop”.
  16. MrMagoo

    UK ME Association 2025: Prognosis, Permanency and Quality of Life in ME/CFS

    I read this leaflet in the past, and again when it was re-issued. I don’t know why I bothered, apart from that I really want some prognosis input.
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