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Where's the accountability? Why are people like this so protected? :mad::mad::mad:

The real psycho-social pathology in ME/CFS. Entirely secondary, entirely avoidable.

Thanks. That is encouraging. :)

Still get night sweats sometimes, though nowhere near as often nor to the degree as during the early years.

Same basic stuff underneath. But LP is both more extreme, and more blatant about it. (I sometimes wonder how much damage Crawely did to her own reputation & standing within the profession with that study, and if that had anything to do with her retiring.)

Is it the specific individual signals or the overall pattern of them that is different?

We certainly do, including some in my backyard, like the Death Adder, though the invasive introduced cane toads (also highly toxic) have taken a lot of snakes out of the game, at least until they learn to not eat cane toads. We have a wide range of sometimes lethal poisonous/venomous animals...

In the early days, not often now, I have had the experience of extremely cold feet, including in the middle of a blazing tropical summer (and not in air-con). It was confirmed a handful of times by asking other people to touch my feet and they all said (without my prompting) that my feet were...

I have an interesting feature of ME in that the 24 hours or so before a flu or cold becomes obvious I usually (though not always) feel distinctly better, sometimes a lot. To the point where it has become a reasonably reliable indicator that a flu or cold is about to fire up. Once the flu/cold...

Self-diagnosis, small numbers, semi-structured interviews, thematic analysis, etc. Limited potential for useful info from it.

Fever-like at the worst times, e.g. serious hot and cold flushes, problems with general temperature regulation, shakes/tremors, extreme night sweats (waking up in a soaked bed, in the middle of winter, for nights on end), sore and somewhat enlarged glands mainly in the neck region. Don't know...

Yes, I think this is an open question at this stage. Any peripheral features may well be downstream consequences of neuronal/synaptic dysregulation in the CNS. Another feature that needs explaining is the often highly dynamic variability of symptom expression in short time frames.

:sneaky:

One of the good things about living in Australia is that we don't have rabies here. Sure, we still don't want to get bitten by a dog. But at least we don't have to worry about getting rabies if we do.

They are conducting a brutal war of attrition against us by ruthlessly exploiting one resource in particular that they have in lavish abundance and we have very little of – sheer stamina. An endless flooding of the zone with shit, knowing full well it takes an order of magnitude more effort and...

It is certainly effective at building their careers and empires. And of course they use problematic and outdated criteria. (Fukuda, & Reeves)

Indeed. The one thing they could do to help us is the one thing they are completely incapable of even considering, let alone doing, which is to get off our backs.

CBT for fatigue is "effective". Not by any robust methodology it isn't.

and the broader economy. Guess who the target audience is for this paper. Emerging research points to the early recovery period as a potential window of opportunity for intervention to alter patient trajectories, though evidence based treatment remains lacking. As we have been suggesting for...

With the extra possible/likely complication that a pair of neurons interacting may be a different phenomena to a few million interacting. Scaling up may introduce additional factors, that might also feedback into how single pairs interact.