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  1. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    From the homeless and mentally ill to us is not a big step. https://www.whitehouse.gov/presidential-actions/2025/07/ending-crime-and-disorder-on-americas-streets/ (Because, as we all know, crime and disorder are never caused by the rich and powerful in society, who are models of probity and...
  2. Sean

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    No argument that the language/terminology needs a good dose of plain English. But I don't have a problem with the basic content.
  3. Sean

    Awakening the sense of the possible: the Symptoms Clinic as liminal affective technology 2025 Greco et al

    Causal complexity characterises persistent physical symptoms (PPS) disproportionate to disease. According to what criteria? I stopped there. Don't need to eat the whole egg to know it is rotten.
  4. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Well, yes, these are very real problems. That is not my concern. You have to factor in who is doing the planning and implementation, whether they are actually genuine about this, and what the tactics they use will be. What happens if they decide that patients like us just need a firm...
  5. Sean

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I think that view is a little uncharitable, @Jonathan Edwards. Overall I think it is a reasonable piece, and a bit more of this kind of stuff might help open the eyes of a few clinicians, and give them some pause for thought in their daily clinical practice. Not everybody in the profession is a...
  6. Sean

    Characterizing Long COVID Symptoms During Early Childhood, 2025, Gross et al.

    And then parents will be accused of being over vigilant, and causing psychosomatic disorders, or worse.
  7. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    This is going to end very badly for US patients.
  8. Sean

    The Effects of a Mindfulness-Based Intervention on Depression and Anxiety in the Long-COVID Population, 2025 , Welbel et al.

    I hope so. I have no doubt that all this drivel will eventually collapse under the weight of it's own inconsistency, vacuity, cruelty, and sheer lack of practical meaningful results. Problem is how long it will take and the human cost. Try to make the most of your circumstances? No argument...
  9. Sean

    Affective dysregulation and sex differences in somatic symptom disorder: A 6-month longitudinal and mediation analysis 2025 Park et al

    This prospective study highlights the contribution of emotional dysregulation to both the severity and course of somatic symptoms in SSD. The findings emphasize the relevance of sex differences and emotion-focused mechanisms in symptom maintenance and improvement, supporting the need for...
  10. Sean

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Bastards. :mad: They really do think they own us, and we have no right to object to what they do with our lives.
  11. Sean

    Persistence of fatigue in the absence of pathophysiological mechanisms in some patients more than 2 years after…, 2025, Baldassarre+

    ...the absence of several investigated pathophysiological mechanisms. Symptoms may be attributable to other factors (i.e., psychological/neurological) that were not investigated. Or they may be attributable to pathophysiological mechanisms you did not investigate.
  12. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    And I will say again: The PACE trial evaluated negotiated GET. It was not FORCED fixed increments. And yet even with this soft version they were still unable to deliver an unambiguous, clinically meaningful result. GET must be used in combination with a change in belief in what the symptoms...
  13. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Yes, be careful what you wish for. Something is not necessarily better than nothing. Depends on what that something is.
  14. Sean

    Psychological flexibility as a predictor of work engagement and symptom severity in personnel with chronic fatigue syndrome, 2025, Surendran

    The findings highlight the potentially important role of psychological flexibility in mitigating symptom severity and enhancing work engagement among individuals with chronic fatigue syndrome. It does no such thing. You have not established causation.
  15. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Because the government is ashamed of it. They are giving every indication that they want it to quietly disappear down a deep dark hole, as fast as possible. Suggests strongly that they know it is a massive fudge and failure, and that any name associated with it will be covered in merde. My...
  16. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Yes, somebody is doing well out of our suffering. I sit on a man's back, choking him, and making him carry me, and yet assure myself and others that I am very sorry for him and wish to ease his lot by any means possible, except getting off his back. Leo Tolstoy – Writings on Civil...
  17. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Repurposing drugs, at this stage, lacks the necessary rationale to choose which drugs to test. Though DECODE might provide some. Also agree that most patients do not need any specific 'treatment' or management advice, beyond a few basics. Sort of thing that could easily fit on a page or two...
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