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  1. Sean

    UK House of Lords/ House of Commons - relevant people and questions

    So, no changes then, beyond some token tweaks to the marketing blurb.
  2. Sean

    News from Germany

    Mao had to accept that killing every sparrow in sight was not a good idea. Yes, there must be appropriate proportionate consequences for those responsible for this failure, or it will happen again. Allowing those responsible to escape any meaningful accountability during their lifetime is not...
  3. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yeah, not sure PG is building his audience with his increasingly fevered antics.
  4. Sean

    Association between Adverse Childhood Events ACEs and long-term COVID-19 symptoms…, 2025, Elkefi et al.

    Retrospective recall is almost a deal breaker for me on its own, without reading any further. Such studies are just too inherently unreliable. So much better to just start with prospective and stick to it. At best retrospective might provide clues about what to look more closely at. But even...
  5. Sean

    Contemporary positive signs of functional limb weakness in post-acute sequelae of SARS-CoV-2: an exploratory analysis…, 2025, Osada et al.

    Proving, as if any more proof were needed, that it is not the patients who are suffering from distorted perception and cognition. Not to mention moral pathology.
  6. Sean

    United Kingdom: ME Association news

    Increasingly of that view myself.
  7. Sean

    PEM discussion thread - post-exertional malaise

    Yes, at least sometimes it can be overridden for a bit, but then comes payback time.
  8. Sean

    Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care, 2025, Cupit

    The story on this is straight forward enough: They have been unable to deliver solid evidence of their basic claim by the standards the rest of science is supposed to meet, indeed the standards that they themselves instituted half a century back. So instead of admitting they have nothing, that...
  9. Sean

    News from Germany

    I don't feel reassured by that statement.
  10. Sean

    Patient-Reported Treatment Outcomes in ME/CFS and Long COVID, 2024, Eckey, Davis, Xiao+

    This. Pacing certainly helped with an initial and welcome improvement, but I quickly hit a ceiling that has never gone away. Beyond that it mostly has just helped slow down the rate of deterioration. But it is still a very unsatisfactory outcome overall.
  11. Sean

    Frustrated, but Motivated: Insights from People with ME/CFS, 2025, Rathmann, Jason et al

    In that alone it is a clear improvement on most papers, which more typically document and promote the authors' interpretations and prejudices more than anything else.
  12. Sean

    What Doesn't Kill You [Forthcoming Documentary]

    :thumbup: The rise and rise of the psychosomatic cult is the greatest and cruelest catastrophe in modern medicine. If you can only get one message across in your film it is that patients are not the problem here. It is the medical profession, and broader governance, that have so grotesquely...
  13. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Relevance Deprivation Syndrome? They ran out of good ideas but can't handle being left behind, so start clinging to something, anything, no matter how ridiculous, just to keep them in the game and feeling important.
  14. Sean

    Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care, 2025, Cupit

    I think this is our greatest threat, that they manage to so impoverish and discourage biological research that it effectively stops. It is not clear that there is currently a sufficiently robust bio research stream that can withstand this relentless war on technical and ethical standards by the...
  15. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Into what? A psychodrama morality play? We could start selling badges/hats/coffee mugs/etc that say: I survived the psychosomatic cult.
  16. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    But I'm a crowd-funded academic... So, you brazenly admit it? Have you no shame? :emoji_upside_down:
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