Search results

  1. Sean

    Multicentre retrospective detection of nailfold videocapillaroscopy abnormalities in long covid patients, 2025, Ginaldi et al.

    They look good, @forestglip. IIRC, formal medical photography uses standardised lighting, backgrounds, colour settings, perspectives, etc. May not need to go all the way, but do need to standardise variables like lighting, framing, size and resolution of image, etc, including a reference scale...
  2. Sean

    Oslo Chronic Fatigue Network

    Correct. Just as there is nothing inherently wrong with radiotherapy, antibiotics, or blood-letting. But there is a huge problem when any therapy is used inappropriately or incorrectly.
  3. Sean

    Research news from Bhupesh Prusty

    The molecular signature between ME/CFS and long COVID can’t be compared easily as majority of the ME/CFS patients accumulate secondary biological features over time. It seems that how the body adopts to the stress of the disease over time makes it different. I assume he means 'adapts'? It...
  4. Sean

    Warning over patients left on antidepressants for decades

    ‘Treatment which involves some social engagement, like group counselling or therapy, would be great for these patients. It is telling that when suggesting social engagement all she can come up with is formalised 'therapy'. Not construct a society that helps the elderly (and everybody else) find...
  5. Sean

    UK - NIHR Call for research on Virtual Wards, 2025

    I thought it had been long accepted that getting a patient back to their normal home environment and daily routine, as soon as medically safe to do so, was optimal in almost all cases, and certainly what patients want.
  6. Sean

    Opinion What are the top replicated ME/CFS findings?

    @Robert 1973 New dedicated thread for this info here.
  7. Sean

    News from the Institute of Neuroimmune Medicine (INIM), NOVA, Nancy Klimas

    Clowns to left, jokers to right Here we are, stuck in the middle with woo
  8. Sean

    Collection of evidence for the efficacy of CBT/GET

    Plus the earlier submissions to Cochrane from Robert Courtney, Tom Kindlon, and Graham McPhee.
  9. Sean

    Subdomains of Post-COVID-Syndrome (PCS) -- A Population-Based Study, Bahmer, Scheibenbogen et al

    This is like claiming that a car which has only 10% left in the fuel tank is defective because it cannot go as far as one with a full tank.
  10. Sean

    Opinion What are the top replicated ME/CFS findings?

    @DMissa Might be worth starting a dedicated thread for that. :thumbup:
  11. Sean

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    Ultimately, the UK altered its NICE guidelines in 2021 to specifically recommend that people with mild to moderate CFS not be offered graded exercise therapy – going directly against the 2015 Cochrane recommendation. Not just NICE going against Cochrane and GET. Getting exercise guidelines for...
  12. Sean

    Cochrane review withdrawn : Pharmacological treatments for chronic fatigue syndrome in adults

    Any doubts left about how utterly broken and corrupted Cochrane is on ME/CFS?
  13. Sean

    Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci, 2022,Hajdarevic et al

    I will take whatever legit clues we can find, however apparently small their influence may appear to be. They might be the smallest of cracks in understanding but (competent) scientists can use them to lead to a much greater understanding. For example, the Lamb shift in physics. It was a tiny...
  14. Sean

    PEM discussion thread - post-exertional malaise

    The lowering of the threshold is an important factor. –––––– The sometimes extreme loss of function via PEM may or may not be classed as a symptom. But that it happens, and how seriously it affects basic operating capacity in daily life, is a very important thing to get the world to understand.
  15. Sean

    Functional Neurological Disorder (FND) - articles, social media and discussion

    At this stage there is no possibility left that they are merely incurious, ignorant, or incompetent. That excuse simply does not exist.
  16. Sean

    PEM discussion thread - post-exertional malaise

    Suggested: and can and usually does result in compromised or lost function. Is it worth adding something about the further reduction or loss of function during PEM usually being temporary*, but it could be made semi-permanent/permanent by inappropriate management? *Given no further...
  17. Sean

    [UK] A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform

    That boat has long since sailed. They have been trying to drag diseases of all kinds into their bailiwick, portraying all medical conditions as having at least a secondary psychosomatic component/overlay. IIRC, that has been Chalder's focus in recent years. All roads lead to psychosomatosis...
Back
Top Bottom