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  1. Sean

    Crowdfunding for David Tuller during April 2025

    That is a relief. I was wondering if it was an all-or-nothing arrangement, or could be done pro-rata. :thumbsup:
  2. Sean

    "Doctors as Patients" documentary Anil van der Zee

    You could copy and paste the whole transcript into a plain text file, then upload that to the forum as an attachment.
  3. Sean

    Psychosocial Nursing Diagnoses of Individuals With Myalgic Encephalomyelitis-Chronic Fatigue Syndrome: A Descriptive Study, 2025, Oter-Quintana et al

    They are clearly doing everything they can to avoid even properly acknowledging, let alone robustly and honestly testing the obvious alternative. Blame Shifting 101 This The alleged "internalizing psychology".
  4. Sean

    Data is not available upon request Hussey

    Raw data, and methodology.
  5. Sean

    Coping with heat

    Poor thermal regulation is a problem. Get an old thick jacket, denim is good. Soak it in water, squeeze it out so it is not dripping too much. Put it on and sit near a fan or breeze. Works well for keeping core temp down, especially if you don't move about much. I removed the sleeves from mine...
  6. Sean

    Crowdfunding for David Tuller during April 2025

    I have been wondering if the updates by the Berkely site on the total amount are being unusually delayed. Seems to have been quite stagnant/slow for a few days. Though in the US and UK at least money is even tighter now for the average patient.
  7. Sean

    Opinion What are the top replicated ME/CFS findings?

    And that is the the most generous possible interpretation.
  8. Sean

    News from the USA, United States of America

    Well, yes. Of course medicos need to communicate clearly. But the problem isn't so much miscommunication, as that what they are communicating, explicitly and implicitly, is unevidenced garbage, or simply disinterest and sometimes outright hostility.
  9. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Me too. The 'new' interface is a hot user hostile mess. One of the worst cases of enshittification I know of on the internet. Profit!
  10. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    If you use Firefox browser they have an Extension you can install called Old Reddit Redirect that loads the page in the old.reddit format automatically. Had it installed for years. Also available for Chrome browser.
  11. Sean

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Me too. Long been interested in how the extra-cellular matrix is behaving mechanically in ME/CFS, including the so-called amorphous component. :geek:
  12. Sean

    Reduced microstructural white matter integrity is associated with the severity of physical symptoms in [FND], 2025, Gninenko, Müller, Aybek

    Again, where is the functional bit in the finding of altered structures? There is now only one way out of this for the medical profession: completely drop the whole FND category and concept, fire those responsible for inflicting this cruel travesty on the world, and start again from scratch...
  13. Sean

    News from the USA, United States of America

    Kennedy is so nothing more than proving beyond doubt all the deep concerns and fears people had about him before he got the job.
  14. Sean

    Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions, 2024, McMullan et al

    There is absolutely no evidence that patients lack motivation. None. If by improving activity planning they mean increased opportunity to implement plans then that might be true, to some modest degree. But if they mean we get more skilled at planning, in the improved cognitive ability sense...
  15. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Surprisingly good, particularly considering the other news often coming out of NZ on post-infection stuff.
  16. Sean

    Measuring the fitted filtration efficiency of cloth masks, medical masks and respirators, 2025, Tomkins et al.

    Masks sometimes come in two versions, one shaped for Asian faces, and another for everybody else. Might be worth checking that out.
  17. Sean

    Measuring the fitted filtration efficiency of cloth masks, medical masks and respirators, 2025, Tomkins et al.

    Quite extraordinary and disturbing, isn't it. So much suffering and death could have been prevented by a simple, cheap, safe, proven protection. Yet here we are. Somehow it has become thoroughly politicised and demonised, probably beyond repair any time soon.
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