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The concept of pacing is not complicated: Keep activity of all kinds below the level that exacerbates symptoms, especially PEM. The problem is putting it into practice, for a bunch of reasons, both external and internal, primary and secondary. Plus it is just a hard learning curve even in the...

$24,157 = 35%, with 18 days left. :thumbsup:

The most powerful force in the universe is not gravity, or dark energy, or entropy. It is the ancient and lethal bureaucratic art of collation and cross-referencing. Something that computers, and now AI, have made many orders of magnitude more effective and efficient.

@Grigor Can you post the content of your responses here? Not everybody has a Linkedin account.

Neurobabble™

Had ferritin test today. Results in a couple of weeks.

You understand it just fine.

This.

The research is promising, and always will be.

Yeah, where are the scatter plots? Which are kind of important info. If the plots supported the claims made by the PACE authors then they would have been published in the main paper, or shortly thereafter. The fact that they are still not published 14 years later, and have not been made...

I always took plausible to mean merely within the bounds of possible, not likely. But apparently the dictionary disagrees with me.

Yes, can't have something as petty as falsification getting in the way of the grand plan. The show must go on!

Evidence and the models built on it have to reach a minimum standard before it is of any validity, let alone can be safely applied in the clinic and medico-legal advice. The vast majority of psych research into ME/CFS does not reach that standard. At best – and I am being very generous here – it...

Not to mention having to do most of the unpaid work in this world (e.g. housework and child-rearing), on top of everything else.

Indeed. They are lighter than a cotton t-shirt. Are they seriously suggesting that the weight of summer clothes is too much of a burden? It is a blatant demonstrably fraudulent claim, and should never have been accepted by the trial steering committee. The real story, of course, is that they...

No argument there.

It is possible that both progressive deterioration and substantial sustained improvement are true. It may be progressive for some and not for others.

Or die quietly, out of sight, so as not to upset the normal healthy people who make these decisions.

RFK Jr. says HHS will determine the cause of autism by September Let me guess: Vaccines, pasteurised milk, and not enough raw meat?

It isn't just the null results alone that sink the psycho-behavioural ship, though they are enough. It is also the marginal value of the non-null results. The pattern is consistent throughout their studies. Even when they get a real result it is so small as to be practically meaningless to...