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  1. Sean

    News from Scandinavia

    Leaving aside that this is a blatant insulting lie, even if it was true the question then becomes why, which leads to asking how the psychosomatic crowd have managed to become so dominant that they can block any research into alternative explanations. And answers to that that might be more than...
  2. Sean

    Psycho-gastroenterological profile of an Italian population of children with disorders of gut-brain interaction: A case-control study 2025 Giorgio+

    Four of the 8 significant results tell us nothing about causal directions (lower quality of life, more medical examinations, rising health care costs, and higher pain scores). They could all be the consequences of undiagnosed or untreated physiopathology. One (higher prevalence of early life...
  3. Sean

    Protocol Effects of an app-based physical training for long- and post-COVID treatment A PILOT study, 2025, Krieg+

    a gradual, individualised approach to physical activity. Straight from the BPS bible. They have learned nothing, and have no intention of doing so.
  4. Sean

    Review Effectiveness and cost-effectiveness of non-pharmacological interventions for functional somatic disorders: Systematic review... 2025 Boluda-Verdú+

    So, 74% of the studies are utter shit, 18% are shit, and less than 8% achieve a bare pass mark. This is beyond pathetic. It is a profound and deeply entrenched systemic failure of the peer-review system in this area of medicine.
  5. Sean

    Opinion mTORC1 syndrome (TorS): unifying paradigm for PASC, ME/CFS and PAIS, 2025, Bar-Tana

    That Which Does Not Kill Us Makes Us Stronger Nonsense, certainly in this context. It is more likely to leave one in a weaker state.
  6. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    A particularly moronic example of this madness is that all mentions of 'Enola Gay' are being removed from the entire defence department, because it contains the word 'gay'. Enola Gay is the name of one of the most famous and historically important aircraft in history – the WW2 American bomber...
  7. Sean

    Review Within person predictors of physical activity & fatigue in long Covid: Findings from an ecological momentary assessment study, 2025, Burton

    In fairness, that is a pretty big concession to reality, certainly by the standards of the psycho-behavioural club. It more or less undermines the rationale for the psychosomatic interpretation. I mean, they are very very late to the party, and we could have told them that for free, and have...
  8. Sean

    Unutmaz post about AI model use for MECFS

    I think those hyperventilating about how powerful and amazing AI is going to be, and soon, are likely to be quite disappointed. More likely is that it will run into a major barrier/s to progress, if it has not already. I seriously doubt that we are going to see truly sentient AI any time soon...
  9. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    disabilities disability They are trying to write us out of existence.
  10. Sean

    The impact of photovoice on the report of emotions in individuals with persistent physical symptoms: Results of an experimental trial 2025 Weise et al

    Yes, it is, um, interesting how the most powerful possible immediate practical help that medicine could recommend – improved material support – is the very one they rarely even mention, let alone test robustly. Instead that factor is twisted into a causally untested, correlation based claim...
  11. Sean

    News from the USA, United States of America

    "...Stone says, Long COVID patients just don't have the luxury to sit this out over the next four years..." Early days yet. Wait until you hit four decades with no useful advance in understanding or treatment.
  12. Sean

    Language Matters: What Not to Say to Patients with Long COVID, ME/CFS, and Other Complex Chronic Disorders, 2025, Nancy J. Smyth et al

    Patients are likely to enter these relationships having already encountered multiple obstacles to obtaining effective and compassionate medical care, including dismissal, denial, misdiagnosis with psychiatric disorders, personalized biases, and medical neglect [5]. It is serious abuse of power...
  13. Sean

    “I still can’t forget those words”:mixed methods study of persisting impact [of] psychosomatic and psychiatric misdiagnoses, 2025, Sloan+

    Exactly. After the extraordinary ongoing effort in trying to figure out how to better misrepresent sell their 'explanations and treatments' to patients, nobody in the profession can claim any ignorance of how patients really feel about having this pseudo-scientific garbage foisted upon them in...
  14. Sean

    News from PrecisionLife Ltd.

    We found 14 novel genes in ME/CFS and 73 in long COVID, many of which we also found in separate patient populations including the UK DecodeME and the US All of Us cohorts. Interesting. At first glance it seems to suggest considerable difference between LC and ME/CFS. But I wonder what will...
  15. Sean

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    BACME have made it crystal clear over the years that they do not represent me or my interests as a patient in any useful legitimate way. The 'reforms' they have made are empty performative gestures designed to do nothing but cover up their appalling track record, in order to continue on imposing...
  16. Sean

    Welfare benefit utilization for people with functional somatic disorder. A population-based cohort study 2025 Weinreich Petersen, Fink, et al

    Note the way they frame it. They do not quite explicitly say that they can never be explained by physical or mental factors, and do not explore the implications of that. Instead they say that they are "not attributable to other physical or mental conditions". But nobody said they were. It is a...
  17. Sean

    Cerebellar microstructural abnormalities in patients with somatic symptom disorders 2025 Du et al

    The findings suggest greater neurite density and enhanced diffusion restriction in the cerebellum of patients with SSD, which may indicate possible adaptive changes associated with chronic stress. Or, the (structural) may indicate the putative "chronic stress" causal component of the SSD...
  18. Sean

    Language Matters: What Not to Say to Patients with Long COVID, ME/CFS, and Other Complex Chronic Disorders, 2025, Nancy J. Smyth et al

    Exactly. Understanding and accepting reality is best place to start making the most of your situation, and change it where possible. Sooner is better.
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