Search results

They are just telling bald-faced defamatory lies about what patients think, as they always have. This has been going on unchecked since I first started finding out about the situation in the mid-2000s, and it is not improving.

By some perverse anti-logic it somehow just keeps getting worse, doesn't it. This cruel drivel just metastasizes unchecked throughout the whole health system. Exactly. At this stage, that should be the entire message for patients. Followed by a grovelling apology for allowing matters to...

Some functional somatic disorders (FSDs) originate as acute nocebo somatic effects and can become 30–50% of chronic somatic presentations to primary care physicians. A claim for which there is not a shred of evidence.

Or at least easier to point out. Getting it taken into account and acted on is another matter entirely. As we have learned the hard way. And data.

highlighting the importance of expectation management. The real question that needs answering here being whose expectation is it that needs 'managing'?

Placebo effects are powerful Wrong from the opening statement, and just gets worse.

I used to get these quite a lot early on, mainly in the thigh muscles. Not so much anymore since I got better at overall management.

Exactly. All this extravagant rhetorical window dressing just to avoid having to say: 'We don't know. We got nothing.' Nothing new under the BPS sun indeed.

i.e. How to more effectively lie to patients, entirely to avoid the liar facing up to the stark appalling fact that they actually have no explanation and no treatment to offer. This should be a formal crime, and a very serious one.

Always within normal for me, including annual routine bloods. (Occasionally get a borderline number, but always settles back to within range by the following year's sample.) Only consistent significant result I get is persistently high ALP, since at least my mid-20s, typically in the 130-160...

Yes, some Americans, not all.

So why not say it that way? It isn't a big deal, and might just be translation or second language issues. But it reads oddly to me.

A tip from an Australian to the fund seekers: We don't do hustle culture here. We hate it, actually. Selling yourself so overtly and in such gushing language, as Americans tend to do, just turns us off. We might superficially share the same basic language, but we use it very differently at times.

I am with those who have very deep concerns about any service provided or informed by the old guard. They simply need to be completely and permanently removed from the entire process. My trust levels in the current medical system on handling ME/CFS are also at rock bottom, effectively zero. I...

A rigorous symptom classification was performed by physicians via clinical consensus. Not sure those two ideas fit together well.

If the brain (and mother nature) does not respect diagnostic boundaries, neither should our treatments. Sounds awfully transdiagnostic. Which is a concern.

Odd way to phrase it.

The two groups differed significantly at baseline on fatigue-perpetuating factors, but not on fatigue severity. So what is the relevance of the 'perpetuating factors'?

Oh, it's evidence. They have just got the interpretation of the evidence completely wrong.

Talk about giving the game away. Their project is entirely about forcing us to submit, independent of any justification, and conning the rest of the world into believing that they should be allowed to do so, and that any failure of their project is entirely our fault. Psychosomatics blew clean...