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I think this is unlikely, although I do believe he is intent on influencing treatment and care via guidelines, etc. As i have said before (probably in this thread): he had a very powerful experience in that he recovered around the time he was introduced to the mind–body stuff and clearly...

https://patientresearchcovid19.com/projects/patient-generated-research-hypotheses/ I thought this was a good idea. Seems the last issue was in 2024.

I think there is space for patients offering hypotheses and anecdata as long as they are labelled as such. So often hypotheses are presented as fact. There was a patient-led hypotheses journal for long covid, but I haven't seen it mentioned for a long time now and wonder if it died a quick death.

The Germans seem really passionate about this line of research but the rest of the world doesn't seem convinced.

The GP I saw was new to the service. I'm not even sure they are still there as they're not listed on the AfME website. It was not worthwhile, apart from to get a detailed letter about my circumstances. The GP was interested in holistic care and basically had nothing to offer. No interest in...

Has the highlighting in these documents been done by Simon? I have absolutely no doubt that Garner is trying to influence, and may have already influenced, other guidelines.

I will tweet them and see if I can get a response.

Well, it's not good that three clinics are apparently closing, especially when rates are rising, but I would suggest changing the title of this thread to something more accurate, as we don't have evidence that all of them are closing, and it might scare people.

I'm suprised she is not listed as an author because I believe she is one of the more active members of BACME and a lot of this dysrgulation stuff has come from the Yorkshire Fatigue Clinic, where she works. She is herself a GP with special interest.

Here is the NIHR award page: https://fundingawards.nihr.ac.uk/award/NIHR174857 Note that Vikki McKeever of BACME is part of this project.

It doesn't matter if the explaination is correct or not. A key part of this approach is the belief that just telling patients stuff, whether it's actually true/verifiable or not, can help. I think they call it psychoeducation.

This has excellent anti-BPS sh*tposting potential, were we ever to go down that route.

Yes, important point. Once you drop those fundamental tenets (deconditioning and fear avoidance), the whole house of cards collapses.

Yeah, they just renamed their Youtube channel. Nothing new.

Generally agree, but this one stood out. It sort of makes sense. I am big believer in focusing on the ME brain, and this seems like a good lead that could tie together seemingly disparate clues.

I have a copy now but I can't upload to the thread as the file is too large.

Yes, the lead author and Robinson are both on this recent paper from the Stanford groups: https://www.pnas.org/doi/10.1073/pnas.2426564122

I forgot to link. Will add now, but it's paywalled.

Some press here: https://www.theguardian.com/science/2025/nov/12/epstein-barr-virus-appears-to-be-trigger-of-lupus-disease-say-scientists https://www.newscientist.com/article/2504061-strongest-evidence-yet-that-the-epstein-barr-virus-causes-lupus/