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and there's no mention of PEM at all in that section about increasing activity. Like the only way they imagine things going is 'the new exertion feels bad to start with but then you get used to it'. Not 'feels OK the first time or the first few times and then you crash', which is the reality...

On rereading it, this line sums up the core issue for me: They're seeing the problem as 'patient does a bit more, feels tired/sore, gets anxious/discouraged, just needs a morale boost to carry on.' Rather than 'patient cleans the kitchen counters, then can't have a shower for the rest of the...

Always this tap-dance around 'flexibility' and 'as needed' (as decided by whom?) and 'likely to be successful but...', and putting the responsibility on the patient to know whether they're doing too much or not enough, but at the same time telling them they're not actually competent to decide...

especially as their model has no room for a scenario in which their involvement isn't needed. Patient recovers, or doesn't recover but grows more confident in managing despite the illness - tick in the box for therapeutic help. Patient shows no improvement or gets worse - more therapeutic help...

to confirm that you found nothing?

With the scattering of extra capital letters it reads like a random Facebook comment rather than something put out by a professional organisation.

One thing possibly worth mentioning is the step count graph, which shows that most people's daily steps change very little around the time of acute Covid infection (a few plummet right down briefly, maybe because they forgot to put the Fitbit on that day, but even those bounce back up again)...

So, if you use '200 clinical predictors' to classify people into 'probably healthier' and 'probably less healthy', you find that the second group take fewer steps on average and don't sleep so well.

or caught it from their children, who are impervious to it according to most of the medical establishment.

Or they'll cite it as proof that all three kinds of rehab are equally effective. Like they keep on citing REGAIN as proof that physical therapy and "behavioural support" are effective.

One easy way to reduce your stress level is to avoid assessing the severity of 8 of your symptoms every 3 hours for 24 days.

Unfortunately the 'Summary of Clinical Trial Results' has been written so as to suggest all three rehab approaches were effective. https://recovercovid.org/sites/default/files/summaries/RECOVERClinicalTrialNEURO.pdf Nowhere in the document does it state the fact that they found no evidence of...

The bar is set so low that I'm genuinely impressed with them for stating the lack of benefit, rather than digging out some vaguely positive speck of data and writing it up as their main finding. Also they seem to have more authors than participants. Generally that might be a red flag for a...

Vaccination would be another example. There is astonishing misinformation going around about vaccines, people promulgating the weirdest ideas, but this hasn't led to medics deciding to give up vaccinating anyone - because they are confident that what they have to offer is better than what the...

But if S4ME is going to advise families to stick to saying 'my child can't do XYZ because it makes them ill', rather than 'my child can't do XYZ because it makes them ill due to [unproven theory]' because the second form of words will expose them to safeguarding procedures and allegations of...

It just seems we are in bizarro-world when the MRC co-hosts a showcase intended in part to "Highlight the bespoke support available from NIHR and MRC for researchers in preparing applications", including representation from an organisation which can't apply to the MRC to get funding for its...

re MRC saying they are ready and waiting to fund what they consider to be good research proposals: Does that mean SequenceME has been turned down for funding by MRC, or never applied?

I've just happened to look at the ME Association's article 'LONG COVID AND ME/CFS: Are they the same condition?' https://meassociation.org.uk/wp-content/uploads/2025/10/COVID-19-LONG-COVID-MECFS-ARE-THEY-SAME-CONDITION-V1-1.pdf it's full of stuff about mitochondrial dysfunction, dysregulation...

Oh I get it. Thanks. Still think the range of 2-225 for the aerobics sessions (in 180-odd days) is a bit startling.

"median of 68 resistance (range 1-68 sessions)" can't be right, can it? Anyhow, it's clear from that sentence that adherence was extremely variable - some participants doing almost no exercise and others doing more than 1 session per day for 6 months - and yet the results are phrased as if the...